While Bob attended a conference in Louisville, I went with a friend to visit the Millices in Knoxville. I haven't played on the floor with a 3 year old in a long time and I can tell you I was worn out after two days!

But it was great fun! I sang a duet with my friend Hank (Shine on Us) and a solo (Knowing You) in the annual Spring Concert. Although I was a bit nervous I found singing about God to be a real blessing because that's what I love to do!

"God, you did everything you promised, and I'm thanking you with all my heart. You pulled me from the brink of death, my feet from the cliff-edge of doom. Now I stroll at leisure with God in the sunlit field of life." Psalm 56:12-13

March 23, 2005

So what's been going on the last three months? On the medical front - let's call this The Good, the Bad and the Ugly! The good - my blood counts have been stable for nine months so I get to taper the cyclosporine beginning April 1st. If all goes well I should be off by November! As far as my knees - seems the kneecaps are out of alignment which has caused the wearing away of cartilage on the outside of each knee - basically like what happens to your tires when your car is out of alignment. The doctor feels that physical therapy (PT) will realign them and a regimen of ibuprofen and glucosamine/chondrontin will relieve pain and maybe even regenerate cartilage. I began PT in December. At first I thought my therapist's plan was to make my hips hurt so I would forget about my knees - and that was just when he was stretching me! However there has been some definite improvement. I did set my knees back a bit by going skiing in February, but what a miracle that I was able to go and to ski three of the five days!! (Almost didn't get to go because I got the "Raleigh crud" and the doctor told me I had to be better or couldn't go at all. Lots of prayers were said on my behalf and the rest is history!) In January I had my regular checkup with the dermatologist. He found two spots that were much darker than anything else on my back and while he didn't believe they were anything, he went ahead and biopsied them. To his and my surprise one turned out to be melanoma, stage 0 and the other was just abnormal. So after the ski trip I had outpatient surgery to remove both of them. Although I was told that to treat melanoma they have to cut down deep and then make sure that the margins are clear, I was a bit unprepared for the size of the incisions and the pain associated with it. Each incision was about 4 inches - so now in addition to the 8-inch scar from the gall bladder surgery, I have another 8 inches of scar (2 four inch sections) on my back - the ugly! I am doing great now and best of all the pathology came back that all the margins are clear! Praise God! So no further treatment is needed - just continue with my six month checkups and have a skin mapping. So actually there is no bad - just good and ugly!

Other than medical - we thoroughly enjoyed Laura's visit home at Christmas though it was too short! I sang a duet with a friend of mine at a retirement home before Christmas. I really enjoyed it - much less nervous. I hope to sing Hank again! Before she returned to Miami in mid-January, Laura and I drove down to Charlotte to see Heather. I stayed with Barre and Gilda while she hung out with Heather. We had a surprise snow of an inch in January. It came down while I was in a ski shop for maybe an hour. Couldn't believe it when I came out and worse yet was the fact that it became ice when it hit the road! My car kept sliding when I had the brake on so I finally pulled into a parking lot and called Bob - figured he could pick me up in late afternoon. We all assumed it would get better by then. Unfortunately it was absolute gridlock - took Bob four hours to drive what normally takes fifteen minutes. I was prepared to stay the night at Winn-Dixie - had a bench, plenty of food and water, etc. - and during my 7 hours I met a lot of interesting people and was asked to pray for some of them. Hmm!

Bob invited Heather to go with us skiing in Vail at the last minute. She was able to ski with Bob in the more challenging terrain. Actually it was a bit of a role reversal - she was the one waiting for us!! We skied Vail, Beaver Creek and Steamboat! February 27th was LifePointe's first anniversary. I took part in the celebration by singing with the newly-formed choir. It was a wonderful service and I look forward to other opportunities to participate in leading worship.

In March I drove to Charlotte to have a one-on-one visit with Heather - it was wonderful! And now I am looking forward to visiting Laura in Miami. Bob and I plan to drive down the week of April 4th. All in all it has been a great three months and I have much to be thankful for. God is sooo good!

"I will praise you, Lord my God, with my whole heart. I will glorify your name forevermore." Psalm 86:12

December 3, 2004

I am recovering a bit more slowly from the gall bladder surgery than anticipated since I had to have an open procedure rather than the laprascopic procedure that had been planned. Seems that I had lots of adhesions making the simpler procedure unsafe. There are three theories on why they were there but the bottom line was it was safer to do the open procedure - so I now have an eight-inch incision. I had the MRI on my knees this week and the good news is that I don't have arthritis or avascular necrosis; the bad news is that I have almost no cartilage on the outside of both knees. I am scheduled to see a Sports Medicine doctor on December 13th to see what my options are. I hope everyone had a wonderful Thanksgiving - we sure did! Laura arrived as a surprise to her Dad on the Tuesday before and Heather came in Wednesday evening. They prepared Thanksgiving dinner for us and Tom and then cleaned up. Since I couldn't, they put up the Christmas tree, decorated it and put out the outside lights. What a blessing from God children are!

November 5, 2004

Wow! I didn't realize it had been so long since I last posted! I hope everyone took that as a sign that all is well because it really has been. I did see Dr. Sullivan in October and my blood counts were good so I decided to tackle some annoyances - gall bladder and knees. I will be having my gall bladder out November 12th and a MRI of my knees November 22nd. I did manage to get a flu shot after waiting 6-1/2 hours- gotta be a record! At any rate I met a lot of great people and shared my story at least three times - must have been why God had me there. That's about it on the medical front. "Give thanks to the Lord, call on his name; make known among the nations what he has done." Psalm 105:1

Bob and I took two trips in October. The first was to Atlanta for the GA Tech-UM game. We picked up Heather in Charlotte, flew Laura in from Miami and stayed with my parents - sort of a family reunion. We had a great time but the visit was much too short. The third weekend in October we made the trip back to the New River trail in Virginia with the Bickels, Colvards, Ed, Alan & friends. This time everyone rode - including me! While I didn't do the 30-40 miles that almost everyone else did, I did ride 15 miles! I was rather proud of myself. We stayed a different B&B this year that was just off the Blue Ridge Parkway in VA and took in the Bluegrass Festival in Floyd, VA, Friday night. On the way home we stopped at Smith Mountain Lake. It is just as beautiful in the fall as summer. All in all, just like last year, we had lots of fun and lots of laughs!

August 31, 2004

"Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great glory that will last forever! So we don't look at the troubles we can see right now; rather, we look forward to what we have not yet seen. For the troubles we see will soon be over, but the joys to come will last forever." 2 Corinthians 4:17-18

My last visit to the doctor was at the end of July - my liver functions had returned to normal except for one which was only slightly off. So it appears that things have settled down. My skin may take a year to return to normal - I'm not too concerned since the discoloration is primarily on my torso which no one is going to see anyway. I will remain on the current dose of cyclosporine for nine months before trying to taper again. The best part - I don't have to see the doctor until October! Yeah!! On the spur of the moment I decided to celebrate my third anniversary post-transplant (August 7th) and all that God has done by throwing a party. It seemed like a good time to do it since it was five years ago about the same date that I was diagnosed and told I had one to five years to live. I tried to include everyone in the Raleigh area who had gone through this journey with me and my family. It was a wonderful celebration of life and God's goodness! Thanks to all of you who live outside of Raleigh - one of these days will celebrate with you too! With Laura's return to the University of Miami, the energy has once again been sucked out of the house. But before she left, we hosted a formal dinner party for her and her girl friends. Bob, Brandon, Marcus and I provided valet parking, food prep and service for the girls. It really was a lot of fun!

July 10, 2004

"Those who trust in the Lord are as secure as Mount Zion; they will not be defeated but will endure forever. Just as the mountains surround and protect Jerusalem, so the Lord surrounds and protects his people, both now and forever." Psalm 125:1-2

I would like to say that I hadn't posted because there wasn't much to report, but the truth is that I have had a slight bump in the road. When I last wrote, I was tapering the cyclosporine and everything was stable. However, at the end of May I was bitten on my back by some unknown insect. The area surrounding the bite became swollen and very red as well as itchy and tender to touch. The nurse checked it at the end of the first week to see if it looked like a target (Lymes Disease) - but it really didn't. So I tried putting Cortaid on it to help with the swelling and itching. By the middle of June I had developed an itchy rash on my back, and chest and the original bite size was still about 4-5 inches in diameter. When I saw Dr. DeCastro he didn't think it was GVHD but had tests done to see if it might be Rocky Mountain Spotted Fever or Lymes. He put me on an antibiotic to treat either one just in case. I decided to call Dr. Sullivan at the transplant center because my liver functions were all up which I knew could be an indication that it was GVHD. When I saw Dr. Sullivan the next day he was fairly confident that it was a reoccurrence of GVHD and thought that I should go back to the cyclosporine dose I was on in April when we began the taper. By the following week the rash had spread a little more and was maddeningly itchy. (Interestingly it never was on my legs or my forearms and only a few areas on my face.) I found if I took Benadryl every 4-6 hours rather than waiting until it got bad that offered some relief. In addition I tried Aveeno bath treatments, Aveeno lotion with steroids, and even ice packs - nothing really had much effect. So I went back to see Dr. Sullivan on June 25th - he did two skin biopsies to confirm the GVHD, found some evidence of it in my mouth and rechecked the liver functions. In addition he put me back on prednisone for a three weeks - 30 MG for 1st week, 20 MG for 2nd week, 10 MG for third week and then off. Almost immediately the itching stopped. After about a week the rash had stopped spreading and began fading some. I saw Dr. Sullivan again July 1 and although the rash is still evident as is the original bite site there is some improvement, the mouth is definitely better and some of the liver functions are better. So we are sticking with this current plan. Dr. Sullivan said that although there is no information that an insect bite could reactivate GVHD there are other external factors such as too much sun that can so I guess we will assume that the insect bite is the culprit. At any rate I feel good and I'm hopeful that I won't be on the prednisone after next week.

Okay, so what else has been going on since May 2nd? Heather graduated with honors from NC State on the 15th - my parents came and Laura made it home from Miami in time for it. We are all very proud of Heather for graduating on time even after taking a semester off to be with me in Seattle. Since graduation Heather has moved to Charlotte - she working three part-time jobs while continuing to look for something permanent. As I mentioned Laura is home for the summer. She went to the first session of summer school at NC State and has a part-time job as a hostess at a nearby restaurant. Knowing this will probably be the last summer she is home I am enjoying every minute! My picture above is from my recital in June - I sang "Someone Like You" from the musical Jekyll & Hyde which I selected because the words reminded me of my wonderful husband and on a deeper level my relationship with God. I actually was able to say something to that effect before I sang and still get through the song! I played tennis for the first time in three years last month and will be playing tonight with the same group from the neighborhood. I didn't do too badly considering the layoff, but I think my knees need new shocks! My timing was off at first but got better the longer I played. I've taken a couple of trips - one to Harker's Island with my small group and the other to Rock Hill to see the Mitchells over the Fourth. Had a great time both places and I managed to not get any sun much to Dr. Sullivan's surprise and relief. All in all the past two months have been good. Praise God for his constant care and love!

May 2, 2004

My visit with Dr. Sullivan was great - all my counts were normal except for the magnesium level which was too high. So I am getting to taper the cyclosporine with the goal of being off of it by August. At that point all I will have to take is a multi-vitamin! WOW! He also took me off bactrim and magnesium. However, after a week my magnesium level took a nosedive so I have resumed taking it for at least another two weeks when it will be retested. God is sooooo good!!!

April 12, 2004

Nothing to report on the medical front since I haven't seen a doctor since February - yeah!! I am due to see Dr. Sullivan next week and hopefully everything will still be stable. I am feeling great and looking more and more like my pre-transplant self. With Spring's arrival I am ready to reintroduce myself to my tennis racket - don't know how well I will play but I am ready to give it a try. A week ago I actually went bike riding with Bob's Sunday group - had to walk the bike up the hills but overall I didn't do too bad. I have been doing research for our office from home. It's great to be involved but not on a full-time basis. Our trip last month to Miami was wonderful! We had a great time visiting with Laura and meeting her friends. The weather was perfect - sunny, breezy 80 degrees. Another milestone was getting to go to the beach for a couple of hours one morning - haven't done that in three years. Driving to Miami wasn't too bad either - 13 hours - it seemed longer coming home. At the end of March I celebrated my 53rd birthday - what a blessing to be alive! "O Lord my God, you have done many miracles for us. Your plans for us are too numerous to list. If I tried to recite all your wonderful deeds, I would never come to the end of them." Psalm 40:5

February 18, 2004

What an interesting month and a half it has been! On the medical front - as a result of treatment for a sinus infection my liver enzyme tests jumped way up at the first of January. However, this week's results were all normal!!! I guess I will have to be careful in the future what antibiotic is prescribed. The weight is finally beginning to come off - 30 pounds so far. I am no longer taking fosamax and hope to begin tapering cyclosporine soon. I also don't have to see a doctor until mid-April! Now that is a real milestone. I obviously have more energy because I was able to remove ice from the driveway and shovel snow - three times so far this year. I also have been helping Tom with his move to Raleigh. The day the movers arrived was pretty harry, but I had made scale drawings of all the rooms of his new townhouse and of his furniture so we could get the movers to put things in the right place. I spent two and a half days helping him unpack - probably overdid but recovered more quickly than I would have last year. At the first of this month I got to be a caregiver for Heather after she had her tonsils removed. (I like being on the other side of this caregiving thing!) She is doing fine now but it took a good eight days before she felt halfway okay. The doctor had told us it would be much tougher at her age and he really wasn't exaggerating! Bob and I have made plans to visit Laura in Miami in March - after all the snow and ice I am ready for some warm weather. "But I trust in your unfailing love; my heart rejoices in your salvation. I will sing to the Lord, for he has been good to me." Psalm 13:5-6

January 4, 2004

I didn't realize that it had been over a month since my last update. The news from December was all good - my blood counts remained stable so Dr. Sullivan took me off the prednisone completely. The only other medication change was raising my cyclosporine dose since my level was too low. I sang a solo in this year's Christmas Cantata. Although I admit to being nervous, it was nothing like past experiences. I guess my perspective has changed and I see it as an opportunity for God to use me. We had a great Christmas with both Heather and Laura at home. Then Tom, Bob's brother, came for a visit between Christmas and New Year's. He is planning to relocate to Raleigh in about two weeks and will be working for our company. So it looks like I will be returning to the office to do the training. Although I don't intend to work full time again, I am thrilled to be sharp enough to be able to do it. I am looking forward to more progress in this new year. "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit!" Romans 15:13

November 21, 2003

Yesterday I received the most exciting news - according to Dr. Sullivan I no longer have any clinical evidence of GVHD!!! He wants me to reduce the prednisone to 2.5 mg every other day beginning the first of December and believes I will be off of it entirely in January. Most of the restrictions have been lifted too - although I think I'll keep the handwashing habit and avoid shaking hands when possible, expecially during cold and flu season. I am planning to celebrate tomorrow by having a steak cooked medium. How amazing - four years ago the diagnosis was so grim and here I am cured and well. God is soooo good!! "What is impossible with men is possible with God." Luke 18:27

Bob's father died peacefully in his sleep October 29th - so Bob and I drove to Memphis for a few days. The rest of the month we have been at home just doing the usual things. However, we are planning to drive to Atlanta for Thanksgiving. My parents are flying Laura to Atlanta so we will get to visit with her too. It has been almost four months since we've seen her so I guess you could say we are a little excited. Happy Thanksgiving to all!

October 21, 2003

The results from the October blood tests were good - so I have stopped taking Acyclovir. Yeah! My platelets were at an all time high of 216 and the liver enzyme tests were stable. I had the colonoscopy yesterday and it was sooo much better than the first time! I didn't have to drink "Go Lightly" as prep and I don't remember anything about the procedure. The polyp was removed and nothing else was found. The procedure will be repeated again in three or ten years depending on what type of polyp it was. I began the dental work today - didn't have to be pre medicated - just routine procedure. I love that word "routine"! Bob and I had the opportunity to go with two other couples to a Mount Airy Bed & Breakfast for a long weekend of relaxing and "re-creating". The guys biked the New River trail in Virginia on Saturday - about 44 miles - while the girls took in the Autumn Leaves Festival in town. Although we were about a week early, there were still some pretty fall colors to see. As I was standing on top of a mountain overlook, I couldn't help but marvel at God's glorious creation. "The heavens declare the glory of God; the skies proclaim the work of his hands." Psalm 19:1

September 23, 2003

What a busy month it has been! Bob and I got Laura settled at the University of Miami in late August. I was very impressed with the campus and the school as a whole. We really miss her but she seems very happy so I can't be sad. Bob says the energy has been sucked out of the house - it is awfully quiet. I started taking voice lessons again this month and am part of a small group that my teacher has put together. Last week I gave a bridal shower for the daughter of my next door neighbor. It turned out very well even though it was last Thursday night after Hurricane Isabel blew through. The storm wasn't very bad here - just some big limbs down. This past weekend Bob and I went to Washington DC to celebrate the marriage of one of Bob's college friends. On the medical front - the bone density results were excellent so I got to stop taking the HRT. My prednisone was reduced to 7.5 mg every other day. My doctor had tests run for CMV and IGG level. I don't know the results but I am to be retested in October. If the CMV test is negative I get to stop taking Acyclovir. So it looks like bit by bit I am getting off all these medications. The other big improvement is that I don't have to see the doctor for two months. I will have a blood draw in October just to make sure everything is going well. During the past month I have had a GYN exam (everything was good), a dermatology exam (another basal cell carcinoma removed) and my first dental cleaning in two years. The dental cleaning was very quick much to everyone's amazement. I need to have a crown as there is a crack in a large filling but I am waiting to hear from the doctor whether I can have it and if so, what precautions I need to take. I have also been scheduled for a colonoscopy in October to remove a polyp that was found when I had the exam in Seattle. I am a bit apprehensive about the procedure since it wasn't a very pleasant experience the first time. However, I am in much better physical shape so hopefully that will help. Whether it is the "South Beach Diet" that Bob and I are on or the reduction in prednisone, the result is that I am finally beginning to see some reduction in weight and a difference in my clothes for which I am very thankful. I also feel a bit more energetic. And finally I had the gray fuzzy hair cut off so that my hair is looking almost normal. Isn't God good!! "And my God will meet all your needs according to his glorious riches in Christ Jesus." Philippians 4:19

August 12, 2003

Last Thursday was my second anniversary post transplant and Bob says now he can finally relax. On Friday I had the bone density exam, but I don't know the results yet. However, the blood tests were all good! I still haven't seen much difference in the fluid retention except in my hands - for the first time in over a year I can wear my wedding band! Since Laura got back from Mexico we have been shopping for UM stuff and trying to get things packed. We leave for Miami on the 20th. This past Sunday Laura and I, along with Joanna and Murray Spruill, sang the offertory at all three services. It was truly a special moment to be able to praise God with my daughter before she leaves for college. I'm sure Murray felt the same way about singing with Joanna. We sang "Grace, Greater Than All Our Sin." I thought about the words as I prepared and about how it is by Go d's grace that I am here today. What amazing love! "Marvelous grace of our loving Lord, grace that exceeds our sin and our guilt! Marvelous, infinite, matchless grace freely bestowed on all who believe!"
"My grace is sufficient for you, my power is made perfect in weakness." 2 Corinthians 11:28

July 25, 2003

I saw Dr. Sullivan at the first of July and he felt that I am doing very well. Those very important blood counts were all good, however, he wants to wait two months before dropping the prednisone. He doesn’t want a flare so he is erring on the side of caution – which is a good thing. I am scheduled for a bone mineral density exam August 8th. If the results are good I can go off the hormone replacement therapy, which I would prefer not to take, as I believe the risks are greater than the benefits at this point. Dr. Sullivan also decided that I would only need to see a doctor and have a blood draw every other month!!! Now that is quite a change from going twice a month. Much of the month I have been helping Laura get ready for her Mexico mission trip (where she is now) as well as beginning preparations for going to the University of Miami in August. Can’t quite believe Bob and I are going to be empty nesters! He is already saying that it is going to be too quiet. I also hosted two dinners this month – one for our small group from church and the other for our neighborhood dinner/tennis group. Well, it is hard to believe I am nearing the two-year mark (August 7th). I stay continually amazed at God’s provision, faithfulness and love. I recently had the pleasure of reading John Howarth’s web site. His stem cell transplant for MF was done six months before mine. We had followed his progress through postings on the MPD list site, and seeing how well he did, was a great source of encouragement and hope when we needed it most. God is so good. I encourage you to check out John’s journey – we both believe in the power of prayer. http://www3.telus.net/public/osseuse1/ “And we know that all things work together for good to them that love God.” Romans 8:28

June 26, 2003

Well after two months I am finally posting an update. I apologize for the delay but between technical difficulties (modem failure, for one) and all the activities associated with Laura's graduation from high school I just didn't get around to doing it. In May Dr. Sullivan told me I can only reduce the prednisone by 2.5 mg each time to avoid the risk of a flare. So for the last five weeks I have been on 12.5 mg every other day. This past Monday's blood tests were the best so far - everything was in the normal range. So as of today I can begin 10 mg every other day - yeah!! The past several weeks have been quite busy, but fun. One of the highlights was helping Laura get ready for her senior prom - she looked and felt beautiful. The following week we had my parents plus Charlie and Edie here for her graduation. The ceremony was very nice, almost intimate - quite different from a large public high school. There were several graduation celebrations to attend over that Saturday and Sunday followed by my voice recital Sunday evening. I did amazingly well despite nerves especially after I reminded myself that this wasn't the hardest thing I have ever done! The following weekend the whole family traveled to Bald Head Island, NC, for a special wedding. Actually we went a couple of days early so we could relax and just enjoy the island. The weekend of June 13-16 we were blessed with a long awaited visit from Aunt Marg and Uncle George. We hadn't seen them since I left for Seattle almost two years ago! Although I held up well during this period, it has taken me a few days to recover. Several of my devotions over the last two months have held significant meaning to me. One had to do with God's testing of Abraham. The author suggested that it wasn't that God needed to know how strong Abraham's faith was, because He already knew. It was Abraham that needed to know, that was why he was tested. So when we are tested, it is for our benefit so we know the strength of our faith. The other devotion that stands out was the one on God's faithfulness. It spoke about the importance of remembering that no matter what the circumstance that God is faithful. So I can say with confidence - I don't know when I will be off all these medications but God is faithful. This is where my hope, joy and strength comes! "I've told you these things for a purpose: that my joy might be your joy, and your joy wholly mature." John 15:11

April 20, 2003

Happy Easter!! What a difference a year makes! Last Easter was my first time back at church, and this year I was able to help lead worship at one of the services. As a result I have been reflecting on my progress. My energy level still fluctuates - afternoon naps are a very good thing! I am not as cold natured as I was last year - I actually wore a short-sleeved shirt when it was 72 outside. My hair is getting long and not quite so curly - I even had a little color snuck back into it! My skin is healthier looking, too. My singing voice is getting stronger - in fact my voice teacher says it is better than before the transplant! My mental acuity is much better although it diminishes when I get overly tired. I still take both cyclosporine and prednisone to suppress my immune system. However, except for the allergy-related problems I have managed to avoid any sort of infections even though Bob has been sick. I admit that I am probably more cautious than some patients - when I go out I avoid for the most part buffets, salads and real crowded places. My blood tests have been very stable since my last posting - so the prednisone has been reduced to 15 mg every other day. I am still not seeing any real reduction in the edema, except for my face and hands. If I am able to keep reducing the prednisone by 5 mg, I just might be completely off of it by August. Now wouldn't that be wonderful! I am beginning to make long range plans. However, I am trying to not to lose my appreciation for each new day. As I learn of others who have not survived, I am humbled and feel that God has plans for me. So as we celebrate Christ's resurrection, I thank God for all his gifts and look forward to the working out of His will in my life. "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit!" Romans 15:13

March 20, 2003

The results of the retest on Monday are finally in and the news is great. The cyclosporine level is good, my blood chemistry is normal and the best news of all is that my liver functions are not only stable but actually normal!!! As a result my prednisone dosage has been lowered another 5 mg so that I am now taking 20 mg every other day! My doctor told me last year that I wouldn't see much reduction in the fluid retention until I got below 25 mg so I am hopeful that I will begin to see some results. "For the Lord is good and his love endures forever; his faithfulness continues through all generations." Psalm 100:5

March 13, 2003

The last week has been interesting. The results of my Thursday visit with Dr. Sullivan were mixed. The liver function tests that we have been watching so closely were stable which should have meant that I would taper the prednisone another 5 mg to 20 mg every other day. However, my cyclosporine level had apparently not been monitored as closely over the last couple of months and was so high that it had messed up my blood chemistry - i.e., bilirubin, glucose, creatinine, potassium levels were all too high! The good news is that after withholding cyclosporine for four days and stopping both the diuretic and potassium, my results on Monday were all normal. God is sooo good! I have restarted the cyclosporine at a lower dose and I will be retested this coming Monday. Overall I am feeling great - the congestion is finally gone! I was able to sing with Laura at the Women's Retreat at the end of February - that was a special treat! I think my energy level is beginning to get better, although I still need a nap in the afternoon. Tuesday night I went with some of the neighborhood ladies to dinner and then the theater to see "The Full Monty" - I really enjoyed visiting with friends and meeting new neighbors plus the play was very funny! "I will trust and not be afraid. The Lord, the Lord, is my strength and my song;" Isaiah 12:2

February 27, 2003

I had a great visit with my parents over the Valentine's Day weekend. However it was tiring and the chest congestion and cough became worse. A chest X-ray was clear so the doctor prescribed a different antibiotic which seems to be much more effective. I actually was able to sing a little this week. I went for a blood draw on Monday and so far my liver function tests are still stable. I pray that they will be the same next Thursday when I see the doctor so I can taper the prednisone some more. "Be joyful in hope, patient in affliction, faithful in prayer." Romans 12:12

February 12, 2003

After four weeks at the lower dose of prednisone my liver function tests are still stable! So I get to taper the dosage by another 5 mg for next four weeks. God is good!! The only problem I have at present is sinus and chest congestion, which seems to be improving. I am planning to travel to Atlanta this weekend for my dad's 80th birthday. This will be the longest trip (other than going to Seattle) that I have taken since the transplant. Another step on the road to normal! Happy Valentine's Day to all.

January 31, 2003

I had great news this week - after ten days of the lower dose of prednisone, two of my liver function tests were normal and one was only slightly above normal!!! Praise God for His faithfulness! If the results are similar February 10th then I might get to decrease the dosage another 5 mg. "being confident of this, that he who began a good work in you will carry it on to completion until the day of Christ Jesus." Philippians 1:6

January 20, 2003

Last week's GVHD reassessment at the Duke Transplant Clinic went extremely well. My liver function tests, although not normal, are stable and my skin, mouth and eyes can be categorized as having mild GVHD. As a result Dr. Sullivan decided to let me decrease the prednisone dosage by 5 mg for the next month. Hopefully the liver functions will remain stable and I will be able to taper the prednisone some more. There is no exact science to this as everyone is different. My platelets were actually in the normal range - which is a good sign too! I can't quite shake the sinus problems that I have had so I had a series of X-rays last Friday. Otherwise I feel great and am ready for the next home project - a new front door. "And to the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast." I Peter 5:10

December 22, 2002

Good news to report - the liver function tests have stabilized over the past four weeks! I do not have to return until January 6th and then I am scheduled to have a reassessment of my GVHD on the 16th at the Duke Transplant Clinic. Hopefully if everything remains stable they will consider tapering the prednisone some more. We are still trying to clean up from the ice storm two weeks ago. There were tops of trees everywhere and it looked a lot like it did with Hurricane Fran - guess we could call this storm Fran on Ice! Since my last post the painting has been finished and, with Heather's help, the house is in its holiday dress. Paul stopped here for a brief visit on his way to Roanoke Rapids, I hadn't seen him since he visited when I was in the hospital in Seattle. My parents will be here for Christmas. It has been a year since I have seen them so I am really excited about their visit! The testimony for the Christmas Cantata was well received and what a joy it was for me to participate in the celebration this year! Thinking back to last December it truly is amazing what God has done! As we approach Christmas Day I pray that everyone will be able to reflect on the reason for this season and thank God for his gift to the world!
Merry Christmas!

November 21, 2002

The past two lab visits to Duke have shown a continued rise in my liver function tests. Not exactly what I wanted to hear - had a bit of a meltdown over it. However, I decided I have a choice on how I look at things and my choice is to continue to trust God and treasure each day as the gift it is. Over the past four weeks my house has been topsy turvy - first with getting new flooring downstairs and then replacing countertops in the kitchen and downstairs bath. There is still some painting to be done but hopefully we can clean things up and get ready for the holidays. I have been asked to give my testimony at this year's Christmas Cantata and I look forward to praising God for his faithfulness. "I will not die, but live and proclaim what the Lord has done." Psalm 118:17

October 28, 2002

My results from last week were somewhat mixed. My hemoglobin, white blood cell count, hematocrit and even my platelets were all good. However, my liver function tests have all gone up. The rise has occurred after I reached the 35 mg every other day so hopefully my body will adjust and settle back down. Obviously I will need to monitor the other areas where I have GVHD (mouth & skin) to see if I detect any changes. Otherwise I am doing great. I made a couple of college visits with Laura and have been overseeing new flooring in the house. "Give all your worries to him, because he cares about you." I Peter 5:7

October 9, 2002

My visit to Duke on Monday was good. Most of my blood counts are in the normal range except for the platelets. I am now at 35 mg of prednisone every other day and the liver function tests are normal to only slightly above normal. The only disappointment is that until the prednisone dosage is less than 25 mg every other day Dr. DeCastro indicated I probably would not see any real change with the edema. However, he decided to increase the diuretic to two twice per day to see if that will help. He also thought there could be a possibility that the tickle in my chest could be due to fluid buildup and not just allergy, so the diuretic might help that too. I need to begin checking my glucose level again as my non fasting level is high. Hopefully I won't have to take insulin again, but if I do I know that this is only temporary. I got four more immunizations (HepA, HepB & Hib boosters and Td) while I was there Monday.

The most exciting thing to happen in the last month was corresponding and talking with my donor!! :) Contrary to what the nurses in the hospital thought he is not from Europe but from Odessa, TX, which I think is pretty cool since I grew up in Houston. One of the things I learned is how Mike became a donor. Several years ago a 7 year old boy at his church was diagnosed with leukemia and he was tested at a drive his church had. Unfortunately no donor was found and the little boy died. However, Mike prayed that he would be a donor for someone. So when he was contacted as a possible match for me (probably after I went to Seattle for the consultation the year before the transplant) he had no hesitation about doing it. He gave blood so tests could be run and then was contacted that the recipient was not ready. Mike was asked to not donate blood for one year. He was contacted last year when I was ready. He told me that the injections he received to cause the body to force the stem cells into the peripheral blood did feel like having a case of the flu. He flew to Fort Worth to have the stem cells harvested over a two day period. As I have thought about his story I realize that God was at work preparing the way for me even before he had totally prepared me for this journey. I am deeply grateful to Mike for giving me such a precious gift and thankful to God for supplying all my needs! "Your Father knows what you need before you ask him." Matthew 6:8

September 15, 2002

The past month has been a busy one. The family traveled to Rock Hill, SC, to visit with Barre and Gilda Mitchell on Lake Wylie. As usual it was a totally relaxing visit and I actually got in the swimming pool for the first time in a year. Another milestone was the night I hit the tennis ball again. Bob said he felt like he was watching a miracle - it really felt good although I had a hard time trying to keep from running instinctively after everything. I started taking voice lessons again - didn't realize what a workout just breathing correctly was!! It will take awhile to get back up to speed but I am thrilled to be able to do it. Labor Day week Bob and I spent at Beech Mountain with our friends Charlie and Edie Copes. The weather was in the 70's so it was absolutely beautiful. I returned to Duke last Monday, September 9th, for a checkup. The results were great - hemoglobin 13.8 (unbelievable) and the liver function tests were all normal. Only my platelets are low and my cyclosporine level is high. I have started the prednisone taper and should be at about 35 mg every other day in mid-October. Hopefully, everything will remain stable and the edema will begin to decrease. I realized the other day that I actually now know how long my life was going to be - as Bob figures it I probably would not have made my 51st birthday. Each day is a precious gift and I thank God for each one! "Teach us to number our days aright, that we may gain a heart of wisdom." Psalm 90:12

August 12, 2002

Bob and I returned from Seattle late Saturday night and I spent most of yesterday and today resting. We were able to visit with Sonny and Celia Sunday before beginning tests bright and early last Monday. They took us to the Skagit Valley and then to Samish Bay where we had dinner at the Chuckanut Inn. It was wonderful to be with them again. Monday I had a fasting blood draw, bone marrow aspiration and biopsy, skin biopsy and a physical exam before lunch. After lunch I had a chest X-ray, pulmonary function test- felt like I was going to cough up my lung on one of the tests - and then went to the University of Washington Medical Center for an eye exam. I had not seen the ophthalmologist when I was there before but the most interesting thing was that she graduated from Trinity University and was there the same time I was- just a year behind! On Tuesday I had a bone density test, skin photos taken and vaccines. After lunch I returned to the clinic by myself (Bob got sick and couldn't go) for a meeting with the nutritionist. On Wednesday I had a gynecologist appointment - Bob didn't go at all because he felt terrible. In the afternoon he felt like walking to the waterfront but we were both tired when we returned. Thursday afternoon we met with the doctor to get the results of the tests. There weren't any real surprises which was good. There is no evidence of myelofibrosis - Praise the Lord! - and I have GVHD of the liver, skin and mouth (all previously known). I get to start the prednisone taper in September as planned so we can see if the prednisone worked. By October I should be down to 35 mg every other day until January when I will need to have another GVHD assessment. We are hoping that it can be done at Duke. While I am tapering I will need to be monitored at least every two weeks. My eyes are dry so I need to use artificial tears more than once a day, my bone density is above average, my lungs are stable and my immune function is low. I am suppose to get the little polyp removed that they found last year soon - I told the doctor that it was like childbirth - not enough time had elapsed for me to consider it! Bob asked him about coloring my hair - no, not until I am off both prednisone and cyclosporine. Can I get a dog? - only if I didn't cuddle it (may as well wait.) I can be around flowers and plants now - just can't handle them - and I can get in both the lake and pool as long as I don't immerse my head. So overall I am doing just great!

While we were at the clinic and the hospital Bob and I were able to visit and express our thanks to some of the very special people who took care of me. The first were the nurses in blood draw who couldn't get over the thickness of the hair! Then we ran into Dr. Tanya Wall who was one of my doctors while I was in the hospital. She was the one that was sitting on the end of the bed when I had the breathing crisis. We also saw the Blue Team scheduler, Joanne, and the Blue Team nurse, Diane, who actually recognized me without help. She gave me a big hug and wanted to know how Heather, Laura and Bob were doing as well as me. We went over to the hospital twice so we could see Juanita, Susan and the cleaning guy, Chuck. They all thought I looked wonderful and cried - apparently not many patients return and clearly it means a lot to them to know what happened after they leave the hospital. I saw two of the nurses, Clarice and Vicki, in the clinic infusion (where I spent so much time getting blood products!) on the last day I was there. More tears and hugs! And finally we visited with Dr. Storb, my last attending physician, for about 30 minutes. In addition to those special moments I experienced more of God's blessings by just sharing my presence with current patients. I represented hope to them. There was one who was having the same experience of constant infusions when no one else seem to - he was very excited to hear that I hadn't experienced that once I left Seattle. On Friday Bob and I took the Victoria Clipper to the San Juan Islands and Victoria. It was a beautiful trip although a bit tiring. As I have reflected on the past year I am continually amazed at the progress I have made, the faith building I have experienced and humbled by God's love for me. He never fails to keep His promise of providing me strength for each day and when I let go and become His instrument I am always blessed. "He has given us his very great and precious promises." 2 Peter 1:4

July 9, 2002

Yesterday I had my checkup at Duke - everything after four weeks looked good! I will not see Dr. DeCastro again until September after my visit to Seattle, which is scheduled for August 5-9. During the week I am in Seattle I will have a bone marrow aspiration, blood tests, pulmonary function tests, eye exam, oral exam and any other tests they feel will assess my immunologic reconstitution and chronic GVHD. I am feeling good except for the edema associated with the prednisone and that is more a nuisance than a problem. In fact I've decided that getting my mental alertness back is worth all the other inconveniences! Last week we went to Smith Mountain Lake, VA, where we rented a houseboat and wave runner for four days. Although I couldn't get in the water or the sun, it was a great family vacation! I did get to ride the wave runner in the early evening after a rainstorm one day, which I really enjoyed!! This past Sunday I sang with the choir for the first time as well as Praise Team. Since I also got up early Sunday morning to see Laura off on her mission trip I was pretty whipped by the time I got home from church. However a two hour nap did wonders! "The Lord is my strength and my song; he has become my salvation. He is my God, and I will praise him, my father's God, and I will exalt him." Exodus 15:2

June 10, 2002

Passed another milestone today - my catheter has been removed!!!! As Bob says I am no longer the bionic woman. The removal process was pretty much as Dr. DeCastro had described it except it took several tugs to get it out. The area is a little sore but should be fine in a couple of days. My hemoglobin was at an all time high 13.1 and my platelets are 142 which is near normal. The liver function tests were also normal. For the first time since I've been home I will get to wait four weeks before my next visit! During the past two weeks I helped Bob paint two bedrooms, we went to see Laura dance, I went out to dinner with the "choir" girls, went shopping with friends, and traveled to Greenville, SC, for a wedding. Although at times I have been tired I have done a fairly good job of listening to my body and cutting back on my activities for a few days in order to get my energy level back up. It is hard to believe that in another two months I will be back in Seattle for my one year checkup. What a miracle God has done in my life!!! "For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all." 2 Corinthians 4:17

May 24, 2002

I had a great visit at Duke yesterday! My platelets were back up - not quite normal but going in the right direction - and my liver function tests were all normal! Praise the Lord! The magnesium level is perfect so we talked about removing the catheter - maybe at the next visit. Sort of shocked me when the doctor told me he just tugs it out! Although I have some edema and still am bruising easily (I have a huge bruise on the top of my foot where I dropped a head of lettuce - even Dr. DeCastro raised his eyebrows about that. Although he wanted to know if I was practicing soccer with the lettuce!) otherwise my energy level is good. Last Friday/Saturday Bob and I with the help of a very good friend gave Laura an after Prom breakfast from midnight to 2 a.m. (I took a two hour nap in the early evening to keep from getting overly tired.) Although I was tired the next day, a two and half hour nap in the afternoon revitalized me. Sunday was busy first with church, then lunch out with friends, then a reception and then a baby shower - had to regroup again on Monday. However, I have felt good so with the weather warmer I have been out walking the neighborhood even the hills. I received news this week that Tom Nicholson died. Many of you may remember that I had asked that you pray for he and his wife back in October when he went home after cancer was discovered in his lung. Both he and Sally had the most wonderful spirits about them and I ask that you pray for Sally's peace and comfort. "My Father will give you whatever you ask in my name." John 16:23

May 10, 2002

I started to update this two days ago but decided to wait until I went to Duke today. My liver function test were all down - two were in the normal range - Praise the Lord! - the prednisone is obviously working. The magnesium level was normal so I don't have to add any more oral and don't need to infuse. The only problem is that my platelets are also down. Dr. DeCastro brought Dr. Sullivan (he used to be in Seattle at one time), the expert GVHD guy here, by to meet me and they will discuss the platelet situation with Seattle. As far as the prednisone's other affects I am happy to report that after almost four weeks my blood sugar levels have been normal, there has been a little swelling but it is minimal compared to the first time and I am bruising easily because prednisone makes the skin thin. My energy level has been so good that I have probably overextended myself a few times lately - helping with a surprise party and working in the attic to name a couple. So over the past several days I have made a point of getting some rest during the day. I am still working on decluttering and redecorating our home, which is really fun. I keep a notebook of ideas and research things on the internet that I see in magazines as well as check out the home improvement stores. I have rejoined the Praise Team as of this week. I had thought that it would be choir that I would go back to first because I didn't think I had enough breath strength for the other. As usual God has shown me he has a better plan - singing the songs that gave me strength through my journey and fewer people involved in rehearsals so less exposure to infections. "For my thoughts are not your thoughts, neither are your ways my ways,' declares the Lord. 'As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts.'" Isaiah 55:8-9

April 29, 2002

Despite the fact I haven't posted in a couple of weeks I am actually doing super! Just as Seattle assured me I am not having the terrible side affects that I had previously. This is because I am in much better shape than I was after having lethal doses of chemo and I started on less than half the previous dose to begin with. After two weeks at 65 mg per day, I returned last Friday to Duke for blood tests. One of the liver function tests was significantly down so the prednisone is working (Praise God!) and I began the taper on Saturday. I seem to have a lot more energy now so I have been out and about more, although I know that I need to be extra vigilant since I am now on two immunosuppressive drugs. Last week Bob and I spent about five days in Hilton Head with Charlie and Edie Copes. Bob played golf a couple times, watched the Heritage Golf Tournament and rode his bicycle while I visited with Edie, went shopping and walked the beach one day. Tuesday we all went to Savannah - I was probably a little girl the last time I was there so it had certainly changed since I had been there. Charlie picked up crabs and shrimp while there. The last night we were there he prepared a big seafood meal - she crab soup, baked shrimp, and cajun boiled crab, shrimp, corn and potatoes - for ten people. Edie and I added a tossed salad and dessert. On the way home Thursday Bob and I toured Fripp Island where our neighbors have built a home. All in all the trip was a very restful. On Sunday I sang with the praise team for the first time since last July - we did "Lord I Lift Your Name on High" and "The Potter's Hand". I had wondered if I would be able to do them without crying because the words are so wonderful. God is so good because my heart was filled with such joy it was easy!

April 13, 2002

I have had a great couple of weeks - the soreness from the bronchitis and biopsy seem to be mostly behind me. I have been shopping, having lunch out, seeing friends, walking, going to church, laughing, etc. In other words enjoying myself and doing normal things. My blood counts were all in the normal range at the visit to Duke last Monday - even the hemoglobin! There is even the possibility that my central line might be removed as early as May! The liver function tests were elevated a little from the previous visit. My doctor was going to discuss this with Seattle but felt that we probably would just raise the cyclosporine dosage slightly. He planned to tell them that I looked great and felt great. So it was quite a shock when he called yesterday to tell me I have to go back on prednisone. Although I will not start out as high as I did in Seattle (less than half) there is still the potential for the same side affects - insulin dependence, swelling, muscle and bone loss to name a few. I will be on 65 mg for two weeks and then begin a six month taper. When I got off the phone with him I started crying - knew it was stupid but I couldn't help it. So I called a special friend to help me adjust my attitude. On her desk calendar was this verse - "But he knows the way that I take; when he has tested me, I will come forth as gold." Job 23:10 I thought back to other things I have learned on this journey - that God doesn't promise a smooth course, only straight and that I may not know God's plans but I do know that he is in control and that I just have to trust him. Later while I was out running errands I was listening to some praise choruses - these verses stood out. "Yes I will run the race till I see your face. Oh let me live in the glory of Your grace." And then this morning when I got up these verses popped into my head - "I'm alive and well, Your Spirit is within me because You died and rose again." God is so good and such a comfort and strength. So once again I am running the course with my focus forward!

April 1, 2002

Happy Easter!! Yesterday was such a special joy for me. After an absence of almost nine months I was able to attend church with my family. In addition to celebrating Christ's resurrection it was also my birthday and the anniversary of my decision to have the transplant. So it was a bit like celebrating my own rebirth. I thoroughly enjoyed seeing my church family and have to admit I was amused when several people didn't recognize me because of the curly gray hair. I had planned to sit in the projection booth but one of my devotions last week was about bold faith and I became convicted that I should sit with my family on the front row instead. Now I hope to attend every Sunday. As for the rest of last week I had a regular visit at Duke on Monday - everything was stable except the cyclosporine level was too low - so the dosage was raised. I did some shopping and had lunch with a friend on Tuesday, went grocery shopping on Wednesday and visited by phone with a friend on Thursday. Friday a good friend brought some long craved chicken salad and visited for a little bit. All in all it has been a marvelous week! "Everything is possible for him who believes." Mark 9:23 "What is impossible with men is possible with God." Luke 18:27

March 22, 2002

We received great news yesterday! At my visit with the liver doctor my biopsy showed acute GVHD rather than chronic and that it was already resolving itself. He called late afternoon to tell me that the results of the liver function tests were significantly lower and that he and my hematologist felt there was no reason to put me back on prednisone. He didn't know why exactly it was resolving itself but very happy about it. I told him that it was a direct answer to prayer. He called back about 30 minutes later when he heard from Seattle and they agreed with my doctors here! God is so good!!! The only change will be to raise my cyclosporine dosage by 25 mg twice per day. This Saturday night Bob and I are planning to attend a dinner at a neighbor's home with the tennis group. I am really looking forward to seeing everyone.

March 20, 2002

As promised the biopsy itself was quick and almost painless, however, the recovery was terrible! Two-thirds of the people who have a liver biopsy leave and have no real pain or discomfort. Unfortunately I was in the other group. I have a high tolerance for pain but this was more than I could handle and the Tylenol was not touching it. (It felt like my liver was having spasms - obviously it didn't like having a hole poked in it.) So after discovering that the pain medication I needed could not be called in, Bob, Heather and I headed to Duke's Emergency Room around 9:30 Monday night. We could readily see that it was going to be awhile so we sent Heather home since she had midterm tests on Tuesday. I had a chest x-ray, a CT scan of my liver and some blood tests. The result of the CT scan was that I have a small liver hematoma. It was 5 a.m. when I was finally given some pain medication and discharged. Needless to say Bob and I were worn out yesterday! The highlight of the emergency room visit were the blood test results - the liver function tests actually were down significantly (Praise God!) and my platelets and white blood counts are at all time highs!! I am feeling much better today - haven't needed any pain killer since last night. "How great is the love the Father has lavished on us, that we should be called children of God! And that is what we are!" I John 3:1

March 14, 2002

The latest on the liver problem is that I am going to have a liver biopsy on Monday. I have been assured by the doctor that it is not as bad as a bone marrow biopsy although the procedure is somewhat similar. The biopsy will be used to confirm a diagnosis of chronic GVHD. If it is in fact GVHD, I would probably be put back on prednisone (not nearly as high as before) but would have to take it for approximately nine months. While I am not exactly thrilled with that prospect, I know that God is in control and He will continue to provide the strength I need for each step along the way to full recovery.

March 13, 2002

(Update by Bob) Based on preliminary test results and consultations with Amy's medical team in Seattle and her doctors at Duke, it is felt that Amy's liver problem discovered on Monday is chronic graft-versus-host disease (GVDH) as opposed to acute GVHD. Further testing over the next two weeks will be required to confirm this. The good news is that this is not immediately life threatening as opposed to the acute GVHD which she developed in Seattle following transplant. A treatment plan will developed over the next two weeks. Amy is fortunate to have the best medical team available and to have had God answer our prayers to heal her.

March 12, 2002

I am feeling much better this week - the earache is gone and the coughing and congestion have greatly improved. My visit at Duke yesterday was good for the most part. My platelets are now in the normal range, which leaves only my hemoglobin slightly below normal. My magnesium level was good so my doctor decided to discontinue the infusion!! I also get to cut out one of the blood pressure medications. The only bad news is that my liver function tests were really high. I will be seeing a liver specialist tomorrow to determine the cause. I haven't gotten out much in the last week but when I have, I've gone without my wig. I get varying reactions to my gray curls but for the most part it has been positive. "May those who fear you rejoice when they see me, for I have put my hope in your word." Psalm 119:74

March 6, 2002

I have just returned from Duke where I had a chest x-ray. I am still fighting an infection which started as bronchitis but now includes an ear infection. (I don't think I have had an ear infection since I was a child.) Last week was tough - first I was coughing so much that it feels like I pulled muscles in my sides and abdomen. Secondly I thought Bob was snoring in my ear but that turned out to be sounds coming from my chest along with a few wheezes and whistles. After a couple days of that I started taking a cough medicine that broke up the congestion in my chest and subdued the coughing. Since I was beginning to feel better I was a bit surprised when I woke up yesterday with an earache! However with a new antibiotic and ear drops for pain I'm sure in another week I'll be just fine. I know I am the eternal optimist! Needless to say I haven't been running around very much - did go to the grocery store last week, ran by the dance studio to sign something for Laura and went out to eat with Laura early Monday evening. In one of my devotions in the last week I came across an interesting idea - God has promised that he will make our path straight - not necessarily smooth or easy - but it will lead directly to where He wants us to go. When you think about it that is a wonderful promise - certainly better than wandering in circles! "Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him and he will make your paths straight." Proverbs 3:5-6

February 25, 2002

Sorry I have been so long in posting. Last Monday I had a transabdominal and an endovaginal pelvic ultrasound to determine the thickness of the lining of my uterus. The endovaginal part was interesting. The results were to be faxed to Seattle for review. On Wednesday last week I woke up with a tickle in my chest and by the evening I was running a low grade fever and felt I was getting bronchitis. After several phone calls to Duke and Seattle, it was decided that I would go to Duke first thing Thursday morning unless I got worse during the night. The doctor confirmed my diagnosis Thursday morning, gave me a prescription for a Z-pak, had some blood cultures done and sent me home to rest. I awoke with a horrible sinus headache Friday and then vomiting on Saturday. By Sunday I actually felt human again and went out for a little while with Laura. Today I had my regular visit at Duke - my counts were stable although the platelets had dropped slightly. A couple of the liver function tests were elevated probably due to the antibiotic I'm taking. The magnesium level was high so the infusion will be cut in half - yeah!! I feel really fortunate that I haven't had any sort of sinus infection or bronchitis until now when my immune system seems better able to fight it off. On Saturday I felt so horrific I wanted to be shot, but then I thought how stupid - I didn't go through all this just to be defeated by a little infection - attitude check time!! And once again God's strength sustained me and comforted me. "Whatever you ask for in prayer, believe that you have received it, and it will be yours." Mark 11:24

February 14, 2002 - Happy Valentine's Day!

My visit to Duke was great - my blood counts are getting near normal (low end of normal). My cyclosporine level was low but my liver function tests were much better. As for the magnesium, we are going to try gradually raising the oral magnesium in hopes that I can get off of the infusion. The highlight of the past week was sneaking into church Sunday night to hear Laura and her friend, Jaime, sing at the Youth Dinner Theater. I sat in the projection booth upstairs out of sight and listened to them. It was so special!! Last week I discovered how vain I am. I found out from the Long Term Followup Team in Seattle that I cannot color my hair until I am off the cyclosporine! I hate to admit it but I was really upset since my hair is coming in very gray all over. Pretransplant I had some gray in the front but none in the back - so this is a little hard to get use to - no transition time. However, I understand the reasons and I am grateful that I am alive! "Rejoice in the Lord always. I will say it again: Rejoice!" Philippians 4:4

February 5, 2002

The results of the Hepatitis B and C tests were negative - praise the Lord! I continued working on decluttering last week - finally managed to find a good spot for my cookbooks other than a countertop! I also got to visit with friends in person and on the phone. One day I went shopping at North Hills Mall since I knew it wouldn't be crowded - it almost looks like a ghost town now! Last Saturday we enjoyed having friends over for supper - Bob grilled and I fixed the other stuff. I have also begun working on singing again. It takes a lot of energy but practice will improve that. Victory Chant, No Higher Calling, Shine, Jesus, Shine, Eagle's Wings, and The Power of Your Love were the ones I worked on. I still tire easily and have to avoid infections but, it really is wonderful to begin doing normal things again. "He gives strength to the weary and increases the power of the weak." Isaiah 40:29

January 29, 2002

Yesterday's visit at Duke went well - my blood counts continue to climb. My bilirubin was down slightly and one of the liver function tests was lower - that's all good. We are still waiting on the results of the hepatitis tests. My doctor reduced the cyclosporine dosage - hopefully this will reduce the need for magnesium. He also said he couldn't feel my spleen. I am continuing to get out and go places when they aren't crowded including lunches with friends. The decluttering is still going on - I have a totally empty drawer in the kitchen now, which is not going to become a junk drawer!

"Even to your old age and gray hairs I am he, I am he who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you." Isaiah 46:4

January 22, 2002

Over the past week I have gotten out a little more. I had lunch with friends on three occasions and did some furniture shopping. Thursday night I was able to go with Bob to a small group meeting at another friend's home. I still have to be careful and avoid crowds but it is fun to be with friends. I am still working on decluttering and reorganizing the house - no chance for boredom with this much clutter!! Tomorrow is Laura's birthday - I can't believe my baby will be 17. What a blessing she is to all of us!

January 15, 2002

Last week I did the grocery shopping by myself. Heather dropped me off and Bob picked me up and brought everything in. The shopping itself wasn't bad - but having to put it all away wiped me out. However, I consider that a major step toward normality. On Saturday I went to the office to work on some accounting. I had planned to be there just a couple of hours but found an error in the August payroll - ended up spending about four hours instead. Yesterday I went to Duke - my counts were up some more - hemoglobin was 11.1! The only concern is my liver function. When I return in two weeks they will check for hepatitis - hopefully that will be ruled out.

"Cast all your anxiety on him because he cares for you." I Peter 5:7

"When he has brought out all his own, he goes on ahead of them." John 10:4

January 7, 2002

The results of my Duke visit last week were great! All my blood counts were up including my hemoglobin which was 9.9 - don't think it has been that high in two years without a transfusion! Also my IGG level was normal so I didn't need an infusion of that either. The magnesium level was high so the doctor decided to drop one of the infusions - yea! Wednesday morning I went out on a few errands by myself before the snow arrived. By Thursday we had a lovely blanket of snow and were snowbound. Laura went sledding with neighbors while I finished organizing the den bookshelves. I finally got out over the weekend with Bob. Today Zana and Debbie came to help me pack away all the Christmas stuff - friends are God's special blessings!

December 30, 2001

I hope everyone had a wonderful Christmas - we sure did! The best gift of all was just being together under one roof. On Christmas Eve I was able to fix a few special food items (didn't require much cutting) that the girls wanted so we had a little party after the usual visit by Santa on the fire truck in the neighborhood. Also it was wonderful to see many of my neighbors while we waited for Santa.

As for the rest of the week: One day I worked on cleaning out old costumes and emptying bookshelves until I was worn out. Another day I organized home videos. Friday was Bob's birthday and I actually drove myself to buy a few gifts. Saturday we celebrated Bob's birthday by going to dinner with some friends who were visiting from out of town. Today I went shopping with Bob and Laura until I dropped!!

Tomorrow Bob is going with me to Duke which will probably be an all afternoon thing. It will be interesting to see what my blood counts are and whether I need any blood products.

The devotions for the last two days from Streams in the Desert were wonderful. Yesterday's was about the need to have what the author called "appropriating faith." We need to claim God's promises and make His Word our own. Over the past five months I have begun to learn what this means, however the author's words convicted me - "Pick any word you want that He has spoken and say, 'That word is my word.' Put your finger on a promise and say, 'It is mine.' By how many of His promises have you signed your name and said, 'This has been fulfilled to me'? Do not miss your inheritance through your own neglect."

Today's was about the "secret of believing prayer." The author says - "Insurmountable difficulties will disappear and adverse circumstances will turn favorable once you learn to pray - not with your own faith but with the faith of God. Emergencies call for intense prayer." I am so grateful to those prayer warriors who prayed week after week for my recovery while I was in Seattle - I am the evidence of the power of intense prayer!!

"So Peter was kept in prison, but the church was earnestly praying to God for him." Acts 12:5

December 23, 2001

This past week was a good one. Monday's visit at Duke went well except for the wait to see the doctor. The CMV results were negative, my platelets and white blood counts were up and my hemoglobin and hematocrit were also up a little - so I didn't have to go back Tuesday for a blood transfusion - yeah!! The doctor has now put me on an every other week visit. On Wednesday and Thursday we had a visit from a long time friend which was fun. Then Thursday night I went out to dinner with some friends from choir - lots of laughter. Laura took me to do a few last minute Christmas things yesterday so now I am through and can just sit back and enjoy the season. This past week's devotions from Streams in the Desert were especially meaningful. Here are some of the verses -

"In all these things we are more than conquerors through him who loved us." Romans 8:37

"This will result in your being witnesses to them." Luke 21:13

"I am not alone, for my Father is with me." John 16.32

December 15, 2001

My visit at Duke on Monday was good although we had to wait a lot longer this time to see the doctor. I am anticipating having to get red blood this coming Tuesday but other than that my counts are relatively stable. I was able to go to Laura's choral concert on Monday night because her choral director arranged for me to sit in the sound booth upstairs. It was wonderful to be able to participate in one of her activities! My parents were here this week for a visit. I really enjoyed seeing them and I think they were pleased with my progress. For most of their visit it looked a lot like Seattle weather here but Friday it cleared up so Daddy joined me on a walk. Later Daddy took me to a couple of stores, the cleaners and Goodwill. Although it was a bit tiring I enjoyed getting out. Today I went to the office for the first time since I got back - spent about an hour there getting some information off of my laptop. This afternoon I took 27 pictures of the girls in hopes of getting something usable for a Christmas card - this was the second attempt! I hope everyone is enjoying the holiday season and remembering the reason for the season!

December 8, 2001

After catching up on other things, Bob had time today to put the necessary software on Laura's computer so I can now update the web site on a weekly basis. I am enjoying being home although it is a bit weird being an observer and not a participant! I have begun doing more things for myself such as fixing my breakfast and lunch and doing the laundry. It is odd how doing those things wear me out but over time I am sure I will get stronger. I am finding that when I am resting I spot my next task - such as emptying a bookshelf or redecorating a room.

My two visits to Duke have gone well and the results of the CMV test have been promising - only two cells per slide compared to four per slide when I left Seattle. (If there are five or more I would have to go back on gancyclovir.) The first week my magnesium level was high so Dr. DeCastro reduced the infusion to once per day. This week it was low so I'm back to twice daily but he reduced the oral magnesium from twelve pills per day to four in hopes of decreasing the diarrhea.

We are getting lots of help from friends and our church family. The church is providing two meals per week which is a big help to all of us. The house is all decorated for Christmas thanks to Zana!! (I don't think it has ever been done this early because I was too busy preparing for the Christmas musical at church.) I still have to avoid crowds for at least six months but I have enjoyed visiting with friends - even went out for a late lunch twice last week! I had forgotten how hilly my neighborhood is but I am walking every day on the more or less level areas and enjoying North Carolina's sunshine!! Praise God for the sheer joy of being alive!!

November 23, 2001 - Day +108

(Posted by Bob) Amy arrived safely in Raleigh Thanksgiving evening after a 4.5 hour nonstop flight from Seattle. She and Heather are still on Seattle time so they are snoozing peacefully. While on the plane coming back, I reflected on how much more difficult this would have been for us had we not had all the help and support from our friends. Just yesterday for instance - From Sonny and Celia and Skip helping us get ourselves and our stuff to the plane in the rain, Sonny and Celia taking the stuff we couldn't get on the plane and Heather's car and helping with getting it back to Raleigh, to Pat and Selma for providing the "rocket" for our return (we averaged about 530 mph), to our friends in Raleigh who were there to welcome us and get us back to our home, and this is just scratching the surface of the help we have received - what more can I say other than we are very fortunate.

Amy's continuing recovery will take several months - its starts today with the delivery of specialized medical supplies to our home and a visit to Duke on Monday morning.

November 20, 2001 - Day +105

It was another rainy gray day in Seattle however it was a good day. This morning Heather and I went to the clinic for blood draw and then to the grocery store and the drug store. After lunch Bob and I took a walk in the rain around the neighborhood. While I took a nap Bob went shopping downtown and Heather did some more packing. When I got up Bob was back and Heather had gone shopping. Tonight was my last dinner in the apartment which caused me to reflect about the last five months. Knowing what I do now would I make the same decision - absolutely. To say that the experience has been difficult is an understatement and that it has been faith building is also an understatement. It was only through God's grace and strength that I could focus on something positive many days. I am looking forward to my return to Raleigh, although it will be quite a while before I can resume "my normal activities" - fatigue continues to be a problem, plus my suppressed immune system makes me susceptible to infections. I am confident that "he who began a good work in me will carry it on to completion until the day of Christ Jesus." Phil. 1:6

November 19, 2001 - Day +104

The Summary Conference with Dr. Storb was today. He reviewed the results of all the tests, gave us his recommendations for my long term recovery and answered questions. I thought the most interesting thing he told us was the chromosome findings from my July bone marrow biopsy. Without going into all the detail, the gist of what he said was that a major change was rapidly taking place to a more serious disease such as AML! All I could think when he said that was - isn't God's timing perfect!! I've been singing "Give Thanks" ever since!

November 18, 2001 - Day +103

Today was a better day than yesterday. I cleaned and changed the dressing on my catheter exit - didn't do it as well as my caregivers but it was adequate. After a two hour nap and lunch, I folded some sheets, emptied the dishwasher, started a load of laundry and took out the garbage - and then had to sit down! Sonny and Celia came over while Heather went to pick up Bob. After Bob (who looks great since he shaved his beard) arrived the five of us went out to dinner.

November 17, 2001 - Day +102

I was really excited when I woke this morning because the sun was out and I didn't have to go to the clinic at all! However as I have to remind myself I am still going to have some not so good days. After a leisurely breakfast and shower I decided to walk with Gilda to the grocery store before lunch. While there I started feeling bad and by the time I got back all I could do was lie down. By this evening I felt better but of course we had missed the opportunity to enjoy the weather. Gilda is leaving tomorrow morning - it has been both fun and a blessing to have her here. She has spoiled me by giving me a foot massage every morning! Bob arrives tomorrow afternoon. I pray that both of them will have safe travel.

November 16, 2001 - Day +101

I had a good clinic visit with the doctors today - everything is still a go for leaving Thanksgiving Day! My blood counts have been stable - in fact my platelets actually were up today as compared to earlier in the week! They plan to tank me up next Wednesday before I leave. The doctor also said he might start the cyclosporine taper next week! This afternoon Gilda and I walked around the neighborhood and included a stop at St. James Cathedral. "Not by might, nor by power, but by my spirit, says the Lord Almighty." Zechariah 4:6

November 15, 2001 - Day +100

Today was another rainy gray day for the most part - the kind of day that makes you want to curl up with a good book. Since I only had a chest X-ray today, the three of us read until lunch. After a nap this afternoon, Gilda and I went for a walk - stopped in at the bookstore since Gilda finished her book today. Then we found a new Italian restaurant that had takeout - so we selected some items for dinner tonight and then finished our walk. All in all it was a great day! "Perseverance must finish its work so that you may be mature and complete, not lacking anything." James 1:4

November 14, 2001 - Day +99

After the blood draw at the clinic we returned to the apartment to hook up the pump. I started one of the new books I got when I went out for my solo walk. After lunch Heather and I began the process of packing. After about an hour I was exhausted so I bailed out to take a nap. While I was napping Heather went to Fridays and got some more boxes. After dinner we packed some more. Heather is still at it but I'm exhausted so I'm off to bed.

November 13, 2001 - Day +98

I had another good night's sleep last night and then a good day today. Gilda and I went downstairs to the exercise room since it was raining rather hard. I walked on the treadmill for about 16 minutes and then used one of those bikes that has the seat with a back. My summary clinic has been set for next Monday and my discharge clinic for the 21st. If all continues to go well, I will be returning home on Thanksgiving Day!

November 12, 2001 - Day +97

I slept very well last night - four hour increments!!! A blood draw this morning was the only thing I had at the clinic today. After a nap this afternoon I went for a walk by myself while Gilda went to pick up Heather from work. I walked around the neighborhood and stopped at both the drug store and a book store before returning to the apartment. It wasn't that long ago that I had to hold on to someone to get around! Thank God for His daily strengthening!

November 11, 2001 - Day +96

After blood draw this morning, I did strengthening exercises while hooked up to the pump and then took a nap before lunch. This afternoon Heather, Gilda and I went to see "Serendipity" - we thought it was real cute. It's probably a chick flick! After the movie we went out to eat at Elliott's. We had a great view of the ferries from our window and the food was great too! Praise God for a great day!

November 10, 2001 - Day +95

I slept much better last night so I started the day much more rested. After going to the clinic for a blood draw, Gilda and I went shopping. This afternoon I had a two hour nap - so I think I am beginning to recover from my sleep depravation. Tomorrow we are thinking of going to a matinee and then out to dinner.

November 9, 2001 - Day +94

Still didn't sleep soundly last night but I probably got more sleep than the night before. I discussed this during my doctors' visit today and they think it might be due to the increase in magnesium. Hopefully my body will adjust to the new levels. The infusion thresholds for platelets and red blood cells have been lowered, so we will see if I can maintain the new levels over the next week. This afternoon Heather, Gilda and I walked around the neighborhood. "So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand." Isaiah 41:10

November 8, 2001 - Day +93

We arrived at the clinic about 9:15 this morning for blood draw and then I had the usual Thursday chest X-ray. By 10:15 I was hooked up and receiving the first unit of red blood cells. Since I didn't sleep very much last night I tried to nap but there was so much noise I didn't get much sleep. I was finished with the last unit by 3 p.m. and got back to the apartment around 3:30. I finally slept for an hour before going to physical therapy. We ordered pizza when we got back. Hopefully I will get a good night's rest tonight so I am more alert tomorrow.

November 7, 2001 - Day +92

Today was about like yesterday - blood draw and platelets. Tomorrow will be full as I will be getting red blood as well as having some appointments. This afternoon Heather and I went to the Hiram Chittenden Locks in Ballard to walk. We got to see some boats and a barge go through and there was a nice park to walk in.

November 6, 2001 - Day +91

Not much to report today - just blood draw and platelets at the clinic. In the late afternoon Heather, Gilda and I went to Volunteer Park to walk. Bob reported on his conversation with my new doctor - didn't add much to what I already knew except that we're shooting for November 19th as the new release date. However I am still taking things one day at a time and trusting God for the rest. I also had a nice long chat with Laura this evening - that was very special!

November 5, 2001 - day +90

I had a great day today. The results of the clinic visit were that there is no GVHD in my colon and the small polyp they found was benign; the internal hemorrhoids do not need treatment; the GVHD of the skin is mild so I don't have to go back on prednisone; the two tests that show how much of the stem cells are the donor's showed 98% and 100% donor cells; and the bone density test showed both my spine and hips to be in great shape more like someone younger than 50! The doctor also felt that my blood situation would stabilize in the next one to two weeks and when it does then I will be released - that was comforting. I did have to have platelets after the visit. Gilda and I decided to celebrate all the good news by going out to dinner tonight. "Is anything too hard for the Lord?" Genesis 18:14

November 4, 2001 - Day +89

We had another relatively leisurely day - just had to get platelets in the afternoon. While I was there the long term follow-up PA stopped by and gave me a preliminary report from my colonoscopy. She said that I have internal hemorrhoids but she did not have the results from the two biopsies that they did. She also indicated that there was a possibility that I might have to go back on prednisone for GVHD of the skin. I should find out about that and the results of the various tests tomorrow at my clinic visit. When we got back to the apartment, Gilda and I worked on Heather's birthday dinner. I made the chocolate chip cookie cake. Can't believe I have a 20 year old daughter! But I am so thankful to God for this beautiful gift!

November 3, 2001 - Day +88

Although I did have to go to the clinic in the afternoon for platelets, Gilda and I were able to go to Volunteer Park this afternoon and then to Blockbuster and the grocery store. I think it was the first time in a week that I actually got to get out! It was wonderful to be out in the fresh air and not at the clinic!! Praise God for His answer to prayer.

November 2, 2001 - Day +87

I have finally recovered from the colonoscopy that I had today. I am not sure which was worse the gallon of "Go Lightly" (someone's sick joke of a name) that I had to drink last night, the procedure itself or the aftermath! At any rate I finally began recovering around 5 tonight. Tomorrow is suppose to be just a blood draw in the morning. I hope and pray for a leisurely day! It is also Heather's 20th birthday!

October 31, 2001 - Day +85

I saw some of the most adorable children in costume today at the clinic. A Halloween party had been arranged for the pediatric transplant patients, children of transplant patients and children of staff. And yes, I spent the whole day at the clinic again - receiving two units of blood and platelets. I don't need any more G shots and the coagulation problem has been resolved, however, the need for red blood remains a problem. Judy leaves in the morning and I hate that most of the time she was here we spent in the clinic, but what a blessing and comfort she has been!

October 30, 2001 - Day +84

Another day at the clinic all day - left at 7:50 p.m. When I arrived at the clinic at 1 p.m. this afternoon I knew I was getting platelets and one unit of red blood today and another tomorrow. However, they had a surprise for me - I also received four bags of plasma and some potassium. The plasma helps with coagulation which they hope will resolve the blood in the stool problem. I also was told that I will be going home with the central line still in - wasn't really surprised by that. "Let us run with patience." Hebrews 12:1

October 29, 2001 - Day +83

Since Judy has been here we have spent almost every day in the clinic all day long - today was no exception. I knew that I was receiving immunoglobin and possibly a G shot but I had no idea how long the immunoglobin would take. Well it seems that it takes about four hours! They also worked in some platelets while I was there. The silver lining was that I got a great nap because they gave me benadryl and something else before the immunoglobin! We got back around 7:30 to find Heather had already prepared dinner for us! My devotion today was from Malachi 3:3 -"He will sit as a refiner and purifier of silver." I have read this before but never thought about the fact that the refiner never leaves the fire or allows it to get too hot. He is constantly watching the metal as it becomes pure. How much more does our Father who never slumbers watch and care for us!!

October 28, 2001 - Day +82

We had a beautiful, although chilly, sunny day here in Seattle today. I received the second unit of red blood today, the G shot plus some more platelets - they have decided to raise the threshold on the platelet level. I also have been taken off the gancyclovir. This should help my counts to rise although not immediately. Since we started a little earlier today I was actually able to get in a good walk after a nap this afternoon. The devotion from Streams in the Desert was very interesting to me - it had to do with being still and trusting God in the midst of turmoil. It compared it to the calm of the eye of the hurricane - what a great mental picture.

October 27, 2001 - Day +81

I had an unplanned long day at the clinic today. We arrived around 10:15 for a blood draw and then waited for the results to see if I needed another shot. Not only did I need the shot but I also needed both platelets and red blood. The platelets arrived around 12:30 p.m. but the red blood didn't get there until almost 3 p.m. I only had one unit today so I will need to get the second one tomorrow. I discovered blood in my stool this morning so this will be checked out by a GI doctor on Monday. The doctor on call and the attending physician did not seem particularly concerned so hopefully it is not anything serious.

October 26, 2001 - Day +80

Barring any unforeseen circumstances my release date has been set for November 9th. At my doctors' visit today the bone marrow pathology and skin biopsy reports were reviewed. I was told the bone marrow showed improved cellularity, a slight decrease in fibrosis. and no blasts. The skin biopsy showed mild GVHD and they are evaluating what to do. I no longer have to take insulin or prick my finger to check my blood sugar level, plus the blood pressure medication has been reduced and the flucanizole has been stopped. After the clinic visits we ate at the clinic cafe before going to get a bone density scan at another location. Although I am excited about coming home there is also a little concern. I will have to be seen frequently at Duke, will need some extra care at home, may still have infusions and may still have the central line in. However I know that God is in control and He has been my strength through all of this and will continue to be as He has promised.

October 25, 2001 - Day +79

Yesterday began with a blood draw in the morning. I received a call from the clinic just before lunch that I needed red blood cells again. We set it up for 2 p.m. with the idea that I would take the IV tree to my gynecology appointment at 3:15. When I arrived at 2 the blood wasn't there, it arrived at 3 but was the wrong type. So I went to the other appointment then began receiving blood about 4 p.m. I left the clinic around 6 p.m. after receiving just one unit so I could eat dinner, hook up a pump and take medication. Then Heather, Judy and I went to the hospital at 8 p.m. so I could receive the other unit of blood. It was about 11:30 by the time I got to bed. This morning I had a MRI at 7:45 a.m., then returned to the apartment for breakfast. Judy and I were at the clinic by 9:45 for an oral medicine appointment. The rest of the morning was filled with clinic stops - X-ray, blood draw, GCSF shot, meeting with a research nurse about participating in a late CMV prevention study and the pharmacy. By the time we left the clinic around 1 p.m., I was exhausted. So after lunch I took a nice long nap! Here is a quote from St. Augustine I liked - "Understanding is the reward of faith. Therefore seek not to understand that you may believe, but believe that you may understand."

October 23, 2001 - Day +77

Today I had some pulmonary function tests. I did fine on three out of four, but the fourth one I had trouble with because of the allergy drainage. When I had so much trouble in the morning, the technician asked me to return early afternoon to try again. There was really no change in the results. After all that blowing and puffing I took a two hour nap, then went for a nice walk with Judy in the sunshine. "Not one word has failed of all the good promises he gave." I Kings 8:56

October 22, 2001 - Day +76

Everything went very smoothly today. I got through the aspiration and biopsy by singing "How Great Are You Lord." The skin biopsy didn't bother me at all but the eye test was very strange. First the nurse numbed my eyes then she stuck little strips of paper under the bottom of the eye. From my perspective it looked like two white pieces of paper sticking straight out of my eyes - very strange. The test was to measure my tearing capacity and I passed! Judy was there for all the tests and stayed for the red blood cells - we left about 4 p.m. We went for a short walk when we got back to the apartment. The reading from Streams in the Desert I especially liked today - "Beloved Father, help me to expect you as I travel the ordinary road of life. I am not asking for sensational experiences. Fellowship with me through my everyday work and service, and be my companion when I take an ordinary journey. And let my humble life be transformed by Your presence."

October 21, 2001 - Day +75

I really slept well last night - four hour stretches! This morning I had a blood draw and then returned for platelets in the afternoon. Tomorrow will be a tough day for me beginning with a fasting blood draw, then a bone marrow aspiration at 9:30 in the morning. I also will be having a skin biopsy and some sort of eye test. At 11 a.m. I am scheduled for two units of red blood - so it will be about 2 p.m. before I will leave the clinic. Please pray that all will go well and that I won't be a grump by the time I'm through! Bob left early this morning and Laura will leave early tomorrow morning. It was so wonderful to be together as a family, hopefully it won't be too long until we are all back in Raleigh! "He gives strength to the weary, and increases the power of the weak." Isaiah 40:29

October 20, 2001 - Day +74

Today has been a very good day. We all slept late and did everything at a much more unhurried pace. This afternoon Heather, Laura and I went for a walk. I'm not sure what was exercised more my legs or my stomach from laughing at them! They are pretty funny when they are together! This evening we are going to Sonny and Celia's home for dinner which should be fun.

October 19, 2001 - Day + 73

I spent most of the day at the clinic today. First there was blood draw at 9 a.m. then the visit with the doctors at 10:45. The visit lasted until almost noon because we were discussing the upcoming tests next week and long term recovery. I had to go back to blood draw for a type and cross so that I could get two units of red blood this afternoon. We then had to meet with the nutritionist before returning to the apartment for lunch around 1:40. The red blood cells were started around 2:45 and I got home about 7:30 this evening. Looking at the bright side, I don't have to go to the clinic tomorrow at all!

October 18, 2001 - Day +72

I started with a chest X-ray this morning at the clinic around 10 a.m. When I got back I did my strengthening exercises. Laura arrived safe and sound around 12:30 - it is wonderful to have her here! This is the first time since August that the whole family has been together. Late this afternoon Bob and I walked to the grocery store - that was a push for me. It became even more so when we walked up the escalator since it wasn't running! "Now to him who is able to do immeasurably more than all we ask, or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen." Ephesians 3:20

October 17, 2001 - Day +71

Today was a little more leisurely since there were no clinic visits scheduled. Bob and I went for a walk in the morning before lunch. In the afternoon we went to the physical therapist where I was given some more strengthening exercises. The therapist also had me get on a machine that exercised both my arms and legs - I was able to do it for about nine minutes. Afterwards my legs felt sort of rubbery - I definitely have a ways to go! Laura is arriving tomorrow and both Heather and I are really looking forward to seeing her! "The Lord is faithful to all his promises and loving toward all he has made." Psalm 145:13

October 16, 2001 - Day +70

The only thing I had at the clinic was a blood draw this morning and I don't have to go at all tomorrow! Yeah! Since it was raining, Bob and I went to REI to wander around and then to the grocery store to buy a pumpkin. The REI store here is huge and it was interesting to see. In my devotion today from Streams in the Desert the verse was - "Let us throw off everything that hinders and the sin that so easily entangles, and let us run with perserverance the race marked out for us." Hebrews 12:1 The interesting thing was that the writer talked about how being discouraged or discontent, although not a sin, can be a distraction and drag us down; and the importance of putting your faith and trust in God. In going through this process there have been a few days when I have been discouraged but I praise God that He has helped me find something good about the day - I certainly could not have done it on my own.

October 15, 2001 - Day +69

Today began with good news - a call from the clinic saying I didn't need to come in at all! I did all my physical therapy exercises this morning and then took two walks this afternoon. On one of the walks Bob and I visited St. James Cathedral - I even walked up the front steps to get in! The cathedral was really beautiful and while we were there the organist began practicing so we had some music too. While I was taking a nap this afternoon Bob and Heather went down to Pike's Place Market and brought back some Alaskan shrimp for dinner. They were delicious! "I wait for the Lord, my soul waits, and in his word I put my hope." Psalm 130:5

October 14, 2001 - Day +68

I began the day with a blood draw and then waited about 30 minutes to see if I would need another shot. I didn't have to because the counts were above where they wanted them!! Thank you Lord! After Bob and I left the clinic we went to Larry's Market to look around and then returned to the apartment for lunch and hook up to the pump. Everyone took an afternoon nap and then Bob and I went for a walk in Volunteer Park. This evening Bob and I went out to eat at an Italian restaurant that the nutritionist had recommended. Although in some ways I was apprehensive, it was really great to be able to get out and be normal!! It has been a month since Bob last saw me and his reaction to how much I have improved puts things in perspective for me. "Give thanks to the Lord, call on his name; make known among the nations what he has done. Sing to him, sing praise to him; tell of all his wonderful acts. Glory in his holy name; let the hearts of those who seek the Lord rejoice. Look to the Lord and his strength; seek his face always." Psalm 105:1-4

October 13, 2001 - Day +67

When I arrived at the clinic this morning at 9 a.m. there had been some problem with the type and cross they did yesterday so another one had to be done. So the blood didn't arrive until about 11:30. Since I was by myself - I walked around the clinic for a little while and did some of my exercises. Bob and Heather arrived in the afternoon with a stuffed animal - a dachshund - so I now have a lap dog! This evening Bob is in charge of dinner and the pumps. My devotion today was from Philippians 4:6 - "Do not be anxious about anything." Do you think there is a connection between Bob being in charge and the devotion! :) Just kidding! I am delighted that he is here!

October 12, 2001 - Day +66

Today has been very interesting and busy! We went to blood draw early only to find quite a wait so that by the time we returned to the apartment we had just enough time to hook up the pump and take the cyclosporine before returning to the clinic. The clinic visit with the doctors was good. They are pleased with my progress and are scheduling my evaluations a little earlier than Day 80 beginning on October 22. Although not a guarantee, I could be released November 5th! God is so good!! This afternoon I went with Linda to the grocery store - I couldn't believe how tiring that was! Afterwards it was back to the clinic for platelets and another growth factor shot. Tomorrow morning I am scheduled for two units of red blood cells and another shot. Linda is leaving tomorrow - it has been so much fun visiting with her over these two weeks :) - and Bob is arriving :)!

October 11, 2001 - Day +65

The weatherman had predicted rain all day but the it turned out to be a beautiful day! I received a phone call from my doctor early this morning to stop taking the potassium supplement and she also prescribed an antihistamine to help my allergies. The only other change in medication was a slight increase in the cyclosporine dosage after they checked the level today. So the time at the clinic was relatively short with just the blood draw and the usual Thursday X-ray. This afternoon Linda, Heather and I went to Green Lake Park to walk. There was a nice trail all around the lake - didn't make the whole thing - but we walked for about 45 minutes to an hour. I was worn out but so thankful for the beauty of God's creation and the strength He gives!

October 10, 2001 - Day +64

Today was fairly uneventful. I slept a little later than usual probably because it was dark and gray outside. and then went for a blood draw. In the late afternoon we went back for another growth factor shot and then we went to the library. I've been taken off another medication, Actigal - yeah! Yesterday it cleared off in the afternoon so Linda and I went to Volunteer Park and I'm pleased to say that I walked much further and faster than previous visits - even did several stairs while there!

I saw Sally Nicholson at the clinic today and Tom has lung cancer so they will be going home because there is nothing more that can be done. Please pray for strength and peace for them both.

October 9, 2001 - Day +63

Yesterday was incredibly long and tiring so I apologize for not posting. I already knew that I was to receive two unit of red blood cells in the afternoon at 2 p.m. but when we arrived I found out that I was to receive platelets and a growth factor shot also. Also the blood bank had been running behind all day so I might have to get the second unit of blood at the hospital sometime after 8 p.m. We were of course not prepared for all that news and I will admit to it was a little disconcerting. However the doctor stopped by and told me that the gancyclovir that I am taking causes the counts to drop. She reassured me that everything was going well and that I am producing all three stem cells. She also changed the insulin levels again. The first unit of red blood cells arrived about an hour late but praise the Lord - we were able to get everything done at the clinic by 8 p.m. when it closed so I didn't have to go to the hospital. Today I went to the clinic for a blood draw and another growth factor shot. Linda and I worked on a jigsaw puzzle before lunch and then I took a good nap. The sun is out now so we will probably take a walk this afternoon. The verse from Psalms yesterday that gave me comfort was - "When doubts filled my mind, your comfort gave me renewed hope and cheer." Psalm 94:19 Today - "Come, let us sing to the Lord! Let us give a joyous shout to the rock of our salvation! Let us come before him with thanksgiving. Let us sing him psalms of praise." Psalm 95:1-2

October 7, 2001 - Day +61

Today was the first really cool day we have had - highs in the 50's. Fortunately the fleece gloves and hat came yesterday so I was able to stay warm when I was outside. I had a blood draw this morning and then stopped at the nurse's station to report some drainage in my throat. It appears to be allergy but we need to watch it. Afterwards Linda and I stopped by the library so I could return the two books I read. It turned out that the book drop was down the stairs and on the opposite side of the building, which I was able to negotiate on my own. This afternoon Linda and I took a walk at a faster pace and included some more stairs. The clinic called late afternoon to let me know that I will be receiving two units of red blood cells tomorrow at 2 p.m. Hopefully it will not take as long as it did the last time. "Teach me your ways, O Lord, that I may live according to your truth! Grant me purity of heart, that I may honor you. With all my heart I will praise you, O Lord my God. I will give glory to our name forever, for your love for me is very great." Psalm 86:11-13

October 6, 2001 - Day +60

Today was a lazy day - just perfect! I slept late and when we did my blood sugar level it was below 100 so I didn't have to have any insulin at all this morning! In the afternoon Celia stopped by for a visit and brought one, three and five pound weights for me to use. Linda and I went for a walk around 4 p.m. including climbing some stairs and before dinner I worked on my strengthening exercises. I also finished another novel today. Tomorrow I have to go to the clinic for a blood draw primarily to check my platelet level. As I continue through Psalms - "Your righteousness, O God, reaches to the highest heavens. You have done such wonderful things. Who can compare with your, O God? You have allowed me to suffer much hardship, but you will restore me to life again and lift me up from the depths of the earth. You will restore me to even greater honor and comfort me once again. Then I will praise you with music and on the harp, because you are faithful to your promises, O God. I will sing for you with a lyre, O Holy One of Israel. I will shout for joy and sing your praise for you have redeemed me." Psalm 71:19-23

October 5, 2001 - Day +59

My clinic visit with the doctors was today and the report was good. My bilirubin is the lowest it has been, the weight is continuing to come off -my stomach is actually getting smaller :) - , no more long acting insulin, the cyclosporine level is where they want it, and my blood pressure is much better. The only concern is my continuing need for platelets which they are going to review. We've been keeping track at home when I have received them and it is getting longer in between. I am beginning to do little things that add normalcy to my life such as putting my own towels in my bathroom, spreading up my bed, taking my purse to the clinic, and putting my own clean clothes away. Linda fixed tuna noodle casserole tonight - brought back wonderful memories of home when my mother would fix it! I have been reading through Psalms and this verse stuck out to me tonight - "Praise the Lord; praise God our savior! For each day he carries us in his arms." Psalm 68:19

October 4, 2001 - Day +58

"Give all your worries and cares to God, for he cares about what happens to you." I Peter 5:7 It is wonderful to have a God who knows your needs and meets them without you asking. Today was another good day - beautiful weather and a reasonable schedule. I had a blood draw this morning and a chest X-ray then could return home to do the infusion. I fell sound asleep (a good thing since I hadn't slept very soundly last night) before lunch as did everyone else and woke up about 12:30. In the afternoon I met with the physical therapist. she was pleased with my progress and I asked for a few other exercises to do. I now have this very thin yellow tubing so I can do some resistance work. Linda and I took a walk in the late afternoon for about 30 minutes - even walked a few inclines. The blood sugar levels haven't been over 200 for several days which is great.

October 3, 2001 - Day +57

I started the day with blood draw early so that we could have the nurse take a look at my right eye which seemed to have hemorrhaged overnight. The doctor looked at it and said it wasn't a problem but that I needed to get platelets since they want to keep the level up. So we came home had lunch and then returned to the clinic. Afterwards I had a good nap and then had a great walk outside with Joan. We even did some stairs!! Tomorrow I go back to the physical therapist for some more exercises. I haven't heard anything about Tom yet - please continue to pray for him. Joan is leaving tomorrow and I will really miss her! She has been a such a special blessing to me! Knowing that God is in control and that He is providing me with the strength I need each day is both a comfort and a joy!

October 2, 2001 - Day +56

Spent most of the day at the clinic receiving red blood cells - got there about 10 a.m. and left about 3:45 p.m. However, I did my strengthening exercises there and walked when I got back. Please pray for Tom Nicholson who was having surgery today on his lung and for his wife Sally. Tom had a transplant for prostate cancer and has been struggling with eating and trying to keep weight on.

"But for you who fear my name, the Sun of Righteousness will rise with healing in his wings. And you will go free, leaping with joy like calves let out to pasture." Malachi 4:2

October 1, 2001 - Day +55

Today was another good day - had blood draw in the morning. Returned to the clinic in the afternoon for a type and cross because I will be receiving red blood cells tomorrow morning. Afterwards Linda and I went to Volunteer Park and took a nice long walk even did a few stairs. Joan has begun training Linda on the pumps, medications, etc. While I'm getting blood tomorrow Linda will attend the Food Safety and Managing Care at Home classes. Thanks be to God for the strength I am gaining every day.

September 30, 2001 - Day +54

Another relaxing day! I slept like a baby last night and got up about 8 a.m. did my devotion and strengthening exercises and then listened to the September 9th Asbury service when Marshall's lesson was "Have a Heart" (it was great). I took a 20 minute walk in the apartment this morning and then went walking outside for about an hour with Linda this afternoon - Joan was getting worried about us because we were gone so long! Joan and I sang a few praise songs and I actually got a high note or two out. There was one sentence from Streams in the Desert today that I especially loved - "When God places a burden upon you, He places His arms underneath you." What a comfort!

September 29, 2001 - Day +53

We had a very relaxing day today - slept in because no clinic visits and leisurely breakfast. This afternoon Joan and I took walked outside for about 40-45 minutes even went to the drug store, did more curb stepping and contemplated trying a set of three steps together for next time. I had a good nap afterwards and then worked on my strengthening exercises. One of the best things today was that I was actually able to sing some praise songs with Joan - I am probably singing them an octave lower but just to get something out is wonderful! We did Garments of Praise, Jesus All for Jesus, and All Things Are Possible! It felt so good to be able to praise God out loud in song!!

September 28, 2001 - Day +52

It is amazing to me how much improvement there has been since last Friday! While I was in blood draw this morning Joan was talking with a man who had seen me on Monday and he was amazed at the difference. The clinic visit today was relatively short and good - my skin looks better, my blood pressure has improved, the diuretic has been reduced because it has worked well and they don't want to dehydrate me, the premeal insulin at dinner has been reduced, no CMV has been detected but they will continue the gancyclovir until Day 100. Joan and I took a walk outside this morning between blood draw and the clinic visit - the pace was definitely quicker! This afternoon I received platelets, took a nice nap and did some strengthening exercises. My devotion this morning was about having peace and contentment no matter the circumstances of life - to show the world what it is in your soul. There is no question that God is continuing to strengthen me daily and I pray that I can be a blessing to others.

September 27, 2001 - Day +51

I have just returned from a nice 30 minute walk outside with Joan without having to hold on to her - even did some curb stepping! We were at the clinic this morning for a blood draw and a chest X-ray and then Joan and I spent a little time in the chapel praying. I was able to add more repetitions to my exercises and used the one pound weights for the arm lifts. The nurse just called to let us know to reduce the dosage of cyclosporine again and that the blood counts all looked good. I slept like a baby last night - only got up twice - it was wonderful! Heather, it turns out, is allergic to penicillin so another prescription has been called in and they want her to take some benadryl to help with the itching - that will probably knock her out.

The verse I posted yesterday was one Joan read that I just loved and gave me such inner peace. This morning when I read my devotion from Streams in the Desert that scripture was there and the subject was about divine healing. What strength I drew from that - Praise God for His unfailing love!

September 26, 2001 - Day +50

"For the Lord your God is with you, he is mighty to save. He will take great delight in you, he will quiet you with his love, he will rejoice over you with singing." Zephaniah 3:17

Today has been a wonderful day - filled with good news and results. Although I didn't sleep as well last night, I have had just enough energy to work on exercises that the physical therapist gave me, I walked around the clinic instead of sitting waiting for appointments this morning and was able to have a nice nap this afternoon. The best news of the day was that the growth factor shot that was give yesterday had immediate results and I don't need another. They still want me to come in daily for blood draw so they can monitor the white blood cell count, but for now things look good. My bilirubin is the lowest that it has been so that my eyes almost look white again! The diuretic is definitely working because when I was weighed today I had lost 14 pounds - and I actually was able to get my tennis shoes on this morning! Yeah!! Heather got the results of the throat culture and she does have strep throat and has received penicillin. She will stay at the hotel until she isn't contagious. After almost five weeks Suze is leaving tomorrow morning. She has been such a gift from God - her love, care, time, commitment, advice - through this first phase of recovery I will never ever forget. I thank God for her friendship and love and a special thanks to her husband Larry for supporting her decision to be here and giving us advice as the non attending physician!

September 25, 2001 - Day +49

Well we finally had a typical Seattle day today - gray skies and mist. However, I had a good day overall with more energy. I slept great last night and didn't have to take anything to get to sleep. I began my new exercises that the physical therapist gave me and took a walk outside this afternoon - even did a little curb stepping! My legs have definitely gone down in size and almost look spindly - obvious loss of muscle tone - so I have my work cut out for me. I did have to go to the clinic this afternoon for a blood draw and then a growth factor shot (this forces the white blood cells out of the marrow into the peripheral blood) as my white blood cell count is down. This was not totally unexpected since the gancyclovir can do that. So they will do this every day until the counts come back up. Although Heather doesn't feel bad her throat looks worse and the clinic felt it best that she move out until they get the results of the culture and is better. I continue to take each day as it comes and trusting God to give me strength.

September 24, 2001 - Day +48

Day 48 and feeling great! I don't know that it was necessarily a great day but I like the rhyme and it was another good day. I had a good night's sleep, my feet almost looked normal when I got up, blood draw was early and then a meeting with the physical therapist in the afternoon. The exercises are very simple but it is amazing the lack of strength I have - so I think adding these will be a very good thing. As I progress more things will be added - I always thought it would be neat to have my own personal trainer! I had a nice nap in the afternoon before returning to the clinic for platelets which only took about 15 minutes to infuse. Joan is picking up the procedure quickly from Suze - just has some classes to go to tomorrow. I don't have anything scheduled at the clinic tomorrow - so hopefully I will be able to get outside for a walk. As for Heather they believe that she has some sort of virus and if she is religious about the hand washing and not actively taking care of me there shouldn't be any problems.

September 23, 2001 - Day +47

This is the day the Lord has made let us rejoice and be glad! Had another great day - even though it did include a trip to the clinic for a blood draw this morning. I was able to take two walks outside - even went into the drug store to get some pictures developed - something almost normal!! Joan arrived safely and it is so wonderful to see her. Suze has begun training her so the transition should be fairly smooth. The increase in diuretic seems to be working so hopefully we will begin to see some improvements. Tomorrow I will visit with a physical therapist to find out what I can do to increase my muscle strength. It is amazing how much effort some things are - this morning I was trying to get my slippers out from under the bed and I thought I was going to be like the commercial - I've fallen and I can't get up!! Heather is having to stay somewhere else because of a sore throat that will be looked at tomorrow - please pray that it can be identified and cleared up quickly.

September 22, 2001 - Day +46

What a great day! I got a good night's sleep, no clinic visit, leisurely morning breakfast and shower, and the best part - Suze took me on an outing to Volunteer Park - a lovely little nearby park (have to drive to it) - and we were able to walk around and look at the beautiful flowers and enjoy the sunshine!! There was a sort of donut-shaped sculpture overlooking a pond that when you were at the right angle you could see the Space Needle through it - I thought that was sort of interesting. While we were there I even let Suze take my picture in front of the dahlias. There is also an Asian Art Museum there that might be interesting to see when I get more strength and it is less crowded. When we got back I began reading one of the novels that Suze picked up from the library yesterday and then was able to take a nice long nap. Yesterday the doctor increased the diuretic, hopefully that will make some difference. Praise the the Lord for this day and the strength that He gave and the beauty of His creation!

September 21, 2001 - Day +45

I started the day with more energy I think because of getting the red blood cells yesterday. Suze and I took a stroll around the outside of the clinic in the morning before the clinic visit. However, it turned into a much longer day than anticipated - clinic appointment took longer and then had to go back for platelets (had a big drop), and urine cultures. I am having difficulty sleeping so it was suggested that I go ahead and take something tonight. I am still eating and drinking well so they are pleased with that. Today is Suze's birthday - so Heather fixed dinner and is in charge tonight while Suze goes to see "Contact" at a theater nearby. Sometimes I feel discouraged but then I remember that God has promised me His strength will be sufficient for each day and that I don't have to understand everything but only trust Him in all things.

September 20, 2001 - Day +44

It has been sort of a mixed bag day - started the morning with chills (no fever) just couldn't get warm and no energy. After lunch I walked around the apartment for 20 minutes and then was able to get a shower. The rest of the afternoon was spent getting two unit of red blood cells - although I did get up and stroll the hall with my IV tree for a little while. We got home about 7 p.m. and I feel I have a little more energy than before. I am now down to just one dose of the gancyclovir so that will make things easier with the pumps. I have been having a little trouble sleeping and in the middle of the night all I suddenly found Put on the Garments of Praise in my head. Before lunch today I was listening to the entire CD and realized how much it was relaxing me - isn't God good! Any way I will have to come up with a way to listen to the CDs in my room to take advantage of what clearly He's offered.

September 19, 2001 - Day +43

Today has been a banner day! I had blood draw in the morning and then a nutrition meeting. We no longer have to keep a food diary - just keep up with fluid intake. After tomorrow morning I will be off the vancomycin which means less infusion and depending on the results of the blood test this morning may get to go to just one dose of the other IV drug. I actually walked outside today for about 35 minutes - good to get fresh air. Suze and I finished a wonderful little book - A Dog's Life by Peter Mayle - light reading but perfect! Tomorrow I have blood draw early, chest X-ray and then red blood cells in the afternoon. That usually makes it a little more difficult to get in a good walk but hopefully I can manage that too. Although I still do not have much singing voice the choruses I find myself singing the most are still Shout to the Lord and How Great Are You Lord - I find them so very comforting and uplifting - reminding me just how much God loves me and strengthens me.

September 18, 2001 - Day +42

Today has been a good day - didn't have to go to the clinic at all today! It has been another gray Seattle day but as my devotion pointed out this morning - "If I see God in everything, He will calm and color everything I see!" I thought that was a great way to begin today. I walked about 45 minutes in the apartment today, played cards with Suze, and got in two good naps.

September 17, 2001 - Day +41

Although the day was gray, misty and a little cool it was a much better day for me. I had blood draw and oral medicine in the morning. (I have been dismissed from oral medicine - mouth is in great shape!) Then this afternoon Heather took me back for some platelets. When I got back I took a 20 minute walk in the apartment at a much greater speed than the past several days - which warmed me up. I also was able to get two good naps in today, which is something Juanita told me I should do. Suze and I also reviewed the weeks since I have been out of the hospital and it is amazing what perspective that gives you about your progress. Bob made it back to Raleigh just fine - two hour delays were all he had. "Praise the Lord, I tell myself; with my whole heart, I will praise his holy name. Praise the Lord, I tell myself, and never forget the good things he does for me. He forgives my sins and heals all my diseases." Psalm 103:1-3

September 16, 2001 - Day + 40

Yesterday was a very strange day for me - I woke up feeling anxious about being able to breathe because I had a little problem during the night. The anxiety built all during the day - finally after conferring with the clinic I took the same thing that I took in the hospital. I was able to get a good night's sleep and felt better this morning. As far as today, I have felt weaker than Friday, but I think as the day has worn on I am beginning to get some strength back. I have been lifting soup cans to build arm strength and taking several walks in the apartment. The last one I was able to pick up some speed so that is a good sign. As I keep reminding myself this is all one step at a time - can't look too far forward - set goals though. "For we are God's masterpiece. He has created us anew in Christ Jesus, so that we can do the good things he planned for us long ago." Ephesians 2:10

Bob left this morning we think! His flight was due to depart around 8:30 a.m. but who knows when it actually went. Just have to wait until I hear he's back to know for sure.

September 14, 2001 - Day +38

I had a good visit at the clinic today - bilirubin was down, cyclosporine level is still high so they have reduced dosage, the swelling in my legs is definitely getting better, they want me to take Tums to increase calcium - never knew they came in so many flavors, still need magnesium by IV, and came up with a new plan for controlling the blood sugar levels - overall they were very pleased with my progress. I had a great night's sleep last night - actually was able to sleep on my sides! I managed a good walk outside today with Suze - had to push a little, but I will have to continue to do that to make sure I keep my strength up. In looking back over the last two weeks, I realized today that last week was not very good but I praise God that every day I was able to find something good in it! This week has been one of steady improvement and I truly rejoice in that. In light of the events of the last few days I have felt odd updating the site without any mention of it - so like many of you, I join in prayers of strength and comfort.

September 13, 2001 - Day +37

Today was a good day - uneventful! A blood draw and a chest X-ray were the only things and after having a good night's sleep last night - I was able to walk a little in the apartment and then a much longer walk with Bob outside this afternoon. Yesterday was not as good - even had a fall at the clinic - didn't really get hurt just scared everyone half to death. The fluid is continuing to come off although slowly and they are still trying to get my cyclosporine levels right. Heather is beginning to get trained in caregiving and took care of hooking me to a pump today by herself! In my devotion today it talked about that in the morning is when God wants me at my best strength and hope to begin my day. That yesterday's fatigue was buried last night and in the morning a new supply of energy was given - this is definitely how today was - Praise the Lord!

September 11, 2001 - Day +35

Yesterday when I arrived at blood draw I found that yet another IV medication needed to be added and the first dose needed to be done in the infusion room to see how I would handle it. I now have 7 hours of infusion - somewhat of a challenge but we are managing. The doctors came down while I was in infusion and decided that I should have a ultrasound today - which meant no food or drink after midnight last night - and then see the GI team. The results of all that today is that they feel the problem is still veno-occlusive disease which occurs from the chemo drugs and for which they is really no treatment - the body has to heal itself, which will take time. Sort of the good news, bad news scenario - but at least it ruled out a liver biopsy for the time being! After starving all morning I think I have made up by eating the rest of the day! Heather and I took a walk outside this afternoon and talked about the events of the day - for her this is the most significant thing that has ever happened. As I am finding out day by day the recovery is a slow process but I know that God has promised me strength for each new day. "After waiting patiently, Abraham received what was promised." Hebrews 6:15

September 9, 2001 - Day +33

Thanks for your prayers for Jim Taufman and his family. Jim did get out of the hospital. I saw him at the clinic on Friday and he seems to be doing well. Bob arrived and it was good to see him - now Suze is trying to train him but he is having brain overload. However, after a good night's sleep, he will be able to handle it. Today was another relatively uneventful day. Although the swelling is going down in my feet, it seems there is always a tradeoff as now I am not eating as well. I was able to go for a walk outside this afternoon with Bob for about 30 minutes.

September 8, 2001 - Day +32

Today was an uneventful day - just the way we like it! Didn't have to go to the clinic at all today - so everything was at a more leisurely pace. The day was beautiful and I was able to walk two blocks twice this afternoon - the best I've been able to do in a while. My hands are almost back to normal as far as swelling and hopefully I will continue to see reductions elsewhere. My appetite and taste seem to be coming back also - which is good. Bob is coming tomorrow for a week! Yeah!

"Thou hast enlarged me when I was in distress." Psalm 4:1

September 7, 2001 - Day +31

Remind me never to predict that the next day will be easier - yesterday seemed like a week in one day! Suze said I was almost catatonic by the time I got home at 5:45 p.m. However, today I have been delivered! My primary care doctor told us that the results of the aspiration and biopsy showed the disease is gone!!! Now all that needs to be done is get through the effects of transplant which is still a day to day thing. The diuretic is beginning to have some affect and will be increased to two per day tomorrow. I am wearing ace bandages on my feet, ankles and calves to push the fluid up toward the heart. They did detect a little of a virus that both the donor and I have been exposed to so I have been switched to a stronger IV drug to combat that before it becomes a problem. I received two units of red cells today and my nurse was another special one! Her son had a transplant in 1999 and so she had some special insights she could share with me - and she is a Christian. We cried together and laughed together over the course of the day. God is so very goood!!!!

September 5, 2001 - Day +29

As expected today was an exceptionally long clinic day. Blood draw was scheduled for 10:45, then a nutrition appointment at noon. In between Suze and I went to the cafe and had something warm to drink. While there, I saw several patients that I have been talking with over the last couple of months. It is interesting to compare experiences and share. One of them was able to tell me about Jim Taufman, he had his transplant 2 days after mine, is still in the hospital and hasn't really engrafted. They are talking about giving some of the same type of growth factor that they give donors - please pray for him and his family. After meeting with the nutritionist, my entire team was planning to meet to discuss the swelling issue based on my kidney and liver functions (I begin a diuretic tomorrow), and also to review lab results and insulin requirements. While they were doing that, I prepared for my bone marrow aspiration and biopsy. Three attempts were made at getting an aspirate but nothing. However, two perfect biopsies were done and I will have to say that it was the easiest and least hurtful I have ever had - this all done by a little five foot woman! Although I hardly bled at all, I was scheduled after that for platelets because of a hemorrhage in my left eye - apparently another common occurrence. It was about 3:45 when we finally left the clinic. Needless to say I was ready for a nap - which made me feel much better. In fact because I had been off my feet for most of the afternoon, I was able to walk about 20 minutes in the apartment at a fairly good pace! Tomorrow should be easy - just blood draw in a.m. and then a MRI scheduled at the clinic around the corner from the apartment - I can get my walk in at the same time!

September 4, 2001 - Day +28

I am having a good day so far - feeling very alert - even did some rearranging of pictures and reading this morning before anyone else was up! Although the swelling is still ever present, I did leg lifts and stretching in bed before getting up too! Per my brother's instructions, we played cards last night which I thinks helps with getting my mind focused. We also had some repairs made in the apartment today - new blinds in the bedrooms (blackout type) and cable TV (we've been watching the US Open but it was so fuzzy we really couldn't see the ball). I had sort of a strange dream last night, but my devotion this morning made it all make sense to me. "By faith the walls of Jericho fell, after the people had marched around them for seven days." Hebrews 11:30 And from Joshua 6:2 "The Lord said to Joshua, 'See, I have delivered Jericho into your hands...." He did not say I will but I have!!!

September 3, 2001 - Day +27

Happy Labor Day to all! Hope most of you are getting to spend time with family and friends doing something fun outdoors. Today has been a much better day than yesterday. I decided to cut back on the anti nausea medication (don't worry they told me I could use on an as needed basis) to see if it would help with the drowsiness. I think it seems to have made a big difference so will continue as planned. Although I was awake during the middle of the night again last night -another foot rub and some hot chocolate got me back to sleep so I was better rested this morning also. The swelling now is the only thing that is causing me any real discomfort and the doctors may have to resort to a diuretic - that's a wait and see. The sun is out now so I am hoping for a walk around the block while it is fairly warm. My devotion today talked about straining and striving to overcome does not accomplish the work God gives us to do - only by resting in God and trusting, does it get done - isn't that beautiful!!

September 2, 2001 - Day +26

Although today was sort of a slow day I think that it is to be expected. I have been improving most of the week, so to have an off day is not too bad. I did manage to make a walk around the block twice this afternoon - probably from strength of will only but I did it! Tomorrow is just a blood draw at the clinic and I am hoping that I will get a good night's sleep and feel much improved over today. I am planning to cut back on some of the anti nausea medication during the day to see if that will relieve some of the sleepiness I had today. We also decided to do the hydration during the day so it would not interrupt my sleep at night - lots of this stuff is trial and error!

September 1, 2001 - Day +25

Just had a blood draw this morning and then rode with Suze on a little tour of downtown Seattle. Wouldn't think that would tire me out but one has to take each step as a baby step and no more! This afternoon we had a nice visit with Celia and then a late afternoon walk outside - it was a little cooler than it has been so I had to bundle up - sort of funny when you see others walking around in shorts and I am in a fleece. I think I am beginning to see some reduction in the edema - my hands look like they are going down - hopefully this trend will continue.

Bob seems to think that others would find it interesting to hear all the medications that I am on - so here is a rundown: cyclosporine (prevents GVHD), prednisone (treats GVHD), bactrim (prevents pneumonia - only take twice per week), valacyclovir (prevents viral infections), fluconazole (prevents fungal infections), multivitamin w/o iron, norvasc (treats high blood pressure), provera (controls menstrual bleeding), compazine (controls nausea), nystatin suspension (treats yeast infection in mouth), and regular insulin (controls blood glucose). As you can see it it is quite a line up and obviously I could not handle this on my own. However, I am tolerating everything fairly well - and they are tapering some of the medications. The only thing that I have noticed is a slight tremor in my hands sometimes but that will go away with time and less meds too!

August 31, 2001 - Day +24

Great news today! My bilirubin has gone down considerably (not quite so golden-eyed), liver is functioning better, kidneys are doing great, cyclosporine level is still high (so no skunk medicine) and they are going to reduce the hydration at night in hopes of getting the fluid off!!! Suze is a great caregiver - even has been massaging my swollen feet (look like two big Jimmy Dean sausages to me) with cream to give them elasticity which helps with the walking. Yesterday I was able to walk twice outside, once with Heather which was very special to me! God is so incredibly good! Streams in the Desert Devotion today- "Blessed are those who have not seen and yet have believed." John 20:29 It is easy for us to get caught up in what we can see - but I am finding that putting my focus on God makes letting go so much more easier. I liked this little poem included with the devotion - "I do not ask that He must prove His Word is true to me, And that before I can believe He first must let me see. It is is enough for me to know it's true because He says it's so; On His unchanging Word I'll stand and trust till I can understand."

August 30, 2001 - Day +23

I have just returned from the clinic - short visit today - just chest X-ray and blood draw. The results of yesterday's blood draw showed that the cyclosporine level was too high so I am not suppose to take that until further notice. (This is the drug that smells skunky - needless to say that didn't bother me too much to hear!) In any event, they think that the high level might be causing some of the other problems - we'll just see how things go. My Dad left this morning for Atlanta and Suze, Heather and I are settling in just fine to our routine. Tomorrow is going to be a longer day at the clinic beginning with a blood draw, meeting with nutritionist and clinic visit, but I know God will supply the strength I need to get through it all. Next Wednesday I am scheduled for a bone marrow aspirate - should be interesting to see what changes have occurred. Today's devotion from Streams in the Desert - "Others went out on the sea in ships; they were merchants on the mighty waters. They saw the works of the Lord, his wonderful deeds in the deep." Psalm 107:23-24 The interesting thing about the devotion to me was that when you are out at sea then the winds can guide you toward where you need to go but if you were close to shore you could easily be driven into rocks. In other words, Trust in the Lord and lean not on your own understanding!!

August 29, 2001 - Day +22

All is going reasonably well here - everyone is getting more organized about procedures and which medications come when. Suze has post-its everywhere with little reminders until things become routine - makes us all feel more comfortable. My clinic visit today was short - just a blood draw and then home. It still made me tired but not like yesterday when it was all afternoon - that totally wore me out! I am doing well but the swelling in my feet, hands, legs and belly are a bit overwhelming at times. I can no longer wear my tennis shoes because they are just too tight - all this is normal and will pass. Heather and Suze are going to buy some sort of velcro sandals to get through this period and some lightweight sweats - guess I should have kept some of my fat girl clothes! :) I continue to praise God for his carrying me when I am weak and for showing me when I must do it on my own. Just a reminder for those who have forgotten - although I absolutely love flowers - transplant patients cannot have them because they are worried about microorganisms that they can harbor. Although we can have silk arrangements they cannot have any moss in them - balloons are about the only safe bet. But I absolutely love the cards and emails, and Heather is making several volumes of scrapbooks for me with the cards and stuff which I will always treasure.

August 28, 2001 - Day +21

This is Bob - I removed the hospital phone number because Amy is now an outpatient -:)

Home! It is remarkable how much better I feel just being out of the hospital. I slept much better last night didn't even need to take anything!! When I woke this morning all I could say was Thank you, God! Thank you, Thank you! The only difficulty we've had is in trying to sort through all the medications in a timely fashion but I think between our four heads we are getting that down too. I have eaten better since I been back in the apartment - probably because I can decided on the spot what I might want rather than the day before. My first clinic visit is not until 2 p.m. today so I should be able to get in a mile this morning and a shower without any rushing.

It was interesting leaving the hospital yesterday - Tanya (one of my Doctors) came in as we were packing up and saw the wig so she wanted me to put it on. So I wore it the rest of the day - some of the nurses didn't even recognize me at first - that was sort of funny. Juanita (which means gift of God) walked us down to the lobby when we left about 3:45 and I told her that she truly had been a gift from God to me - we hugged and laughed and will stay in touch through email.

August 27, 2001 - Day +20

"He took him aside, away from the crowd." Mark 7:33 - This verse was from my devotion this morning and I was really struck by it. These days in the hospital have removed me from the busyness of life and given me a chance to really trust in God to lean on him more. I praise Him for this time and I praise Him for the healing that he has made in my overall life!

It looks like today is the day I will go home. Suze arrived yesterday and everything seems to be going well. My little trip outside yesterday was quite a joke. The nurses were so worried about the construction going on around the hospital because it kicks up some sort of virus that we are all exposed to but of course I am more vulnerable - that they made me wear a mask, sunglasses and promise to just step outside briefly get my fresh air and come back in to do the laps! I sort of looked like some celebrity incognito - especially with my entourage of Suze, Heather and my Dad! :) The people on the elevator gave me a wide berth - probably thought I would infect them!

August 26, 2001 - Day +19

Thanks to all of you have been praying for a good night's sleep for me - I actually slept 8+ hours last night so I am raring to start the day! It is about 6:30 here so I assume the many of you are gathering for worship and praise - know that my heart is there with you! My singing voice is still a little weak but my inner voice is loud and strong. I have been listening to another Selah CD (Be Still My Soul) - and found this song I especially liked - "One Thing I Know".

"Something in your eyes I see, Reminds me of what I used to be, When I was still uncertain of the truth, Sleepless nights that turn to days, Alone inside an endless maze, Counting on someone to see me through. Chorus: If there is one thing I know, you are never left alone, "Cause you can always call on Jesus' name, If there is one thing I pray, It's that Jesus helps you find a way, To make a change and listen to your heart, God will take away your pain, If you choose to let it go, If there is one thing I know. How can I convince your heart, His light can find you in the dark, And only He can make your blind eyes see, For if we speak of lost things found, Of lives that have been turned around, Then tell me who knows better, child , than me? Repeat chorus Bridge: I would never stake my life on any lesser thing than the cross of Christ where he gave his life to ease my sufferering".

The song seem to complete my devotion which was from Job 28:14 "It is not in me." I am so grateful that is true because I would never have had the strength to do this on my own!!!!

Additional progress - I am now taking all my medications orally - the cyclosporine pills are a little hefty but I managed to get them down!! Yea! I have also been given permission to go out late this afternoon and get some fresh air - I can hardly wait! :) Still don't know if release will be tomorrow or Tuesday but I am rapidly moving toward it - Praise God for his healing!!

August 25, 2001 - Day +18

I woke up about 6 a.m. this morning and couldn't get back to sleep so I have been watching the sun come up over Lake Union and now all the single man crew teams are out practicing - since they are all sitting backwards how do they keep from running into things? While watching I was listening to my "Revival at Belfast" CD - so peaceful!! I ate better yesterday so the doctors are pleased about that and they have cut back on some of the medications which they also hope will help with the eating and nausea. Daddy and I had a pump review class yesterday so if I need to have any IV fluids at home we will be able to program the pump and hook up the meds. It's pretty simple. We also have had an insulin testing clinic. My blood sugar levels have been up and down because of the steroids so I have to have it checked and then get a dose of insulin if needed. They were giving it in my abdomen but it has begun to look very bruised (low platelets) so we've gone to my arm. It really doesn't hurt just a nuisance. I have already completed 1 mile holding on to both Paul and Daddy - doesn't get better than that! :)

August 24, 2001 - Day +17

Oh what a glorious morning - the sun is shining brightly on the lake and everything looks nice and green after the last two days of rain. Can't you just see God smiling on his handiwork!! Last night was a rather busy night - I had two units of red blood cells, and one unit of platelets. May have to have more platelets today in preparation of an endoscopy. The doctors want to check to see if I have GVHD in my esophagus and stomach which might be causing the problems with nausea and eating. I have to admit I am a little nervous about it but I know God will see me through and I'm told they will sedate me. I am also suppose to have a chest X-ray this morning. My brother, Paul is coming to see me today and tomorrow - what a blessing since Laura leaves today.

"Even the wilderness will rejoice in those days. The desert will blossom with flowers. Yes, there will be an abundance of flowers and singing and joy!" Isaiah 35:1-2

The doctors just came around and it looks like I will have a reprieve on the endoscopy today because they felt like I ate better yesterday - may still have to have it early next week but we all know the faithfulness of God and he has never failed me EVER! One of the doctors was talking about meeting with a biofeed back person but I said I get my feedback from the Lord!

August 23, 2001 - Day +16

My counts continued to go up today - I am no longer neutropenic which means that engraftment is continuing! The only difficulty I seem to be having is with nausea which at least today was controlled by medication round the clock. All of this is quite normal and I am trusting God to hold me up when I cannot do it on my own. I have managed to eat a little and fortunately I am still getting much of the nutrition by IV. The doctors have decided to begin back off some on the medications and they believe that will help also. I got to have one last walk with Laura before she leaves tomorrow - I will miss her but she really needs to get home to school. At least I think she feels good to know I am getting closer to leaving the hospital. My billirubin has come down so my eyes are not quite so yellow now and the rash has subsided considerably. I have been able to get some sleep at night either with the antinausea drug or a sleep aid, which makes me feel much better in the morning!

August 22, 2001 - Day +15

Good Morning! I woke up this morning feeling really rested for the first time in days! So here I am sitting by the window looking at a gray Seattle morning, and feeling God's presence everywhere I look. The doctors haven't come by yet so I don't have anything to report, but I thought while I was feeling good I would post something. Since there is the possibility that I might get to go to the apartment this weekend or early next week, my Dad is attending the caregiver classes this week since Suze won't be able to go until next week. Today he has a pump class and then we both have to get some training here in the room about insulin levels - a side affect of being on the steroids. Well my counts continue to go up so it looks like we are shooting for a Monday release date - can't believe how quick it has gone - clearly God's hand has been at work.

August 21, 2001 - Day +14

This is Heather. Her counts continued to go up today, however she still feels naseous and was not feeling up to updating the site today. She is not eating yet but was able to drink water. She successfully completed seventeen of the twenty laps she is supposed to try to do each day. She was able to have a restful night of sleep last night after they gave her some medication to help her sleep, so she seemed much more rested today.

August 20, 2001 - Day +13

This is Bob, Amy is doing fine but feels a little queasy and asked me to do the update. Today, Amy had some very good news as her white blood and neutrophil counts shown a marked increase. The doctors feel than this is the beginning of engraftment. The next few days will tell. Since I am returning to Raleigh tomorrow, this is an especially encouraging development and something that our group at Asbury specifically prayed for. Amy's first caregiver is scheduled to arrive on Sunday which may be just about right if the improvement continues.

The staff here is all very happy with Amy's progress as this encourages them in their efforts. Although we have been advised that the blood counts will vary, I am looking forward to hearing tomorrow's news. The transplant patients all get their blood drawn at 3 am each day so the counts will be available in time for morning rounds.

All of us except Amy are now headed out to find some salmon to eat -:)

August 19, 2001 - Day +12

This is the Lord's Day, Let us rejoice and be glad! This morning I awoke to a beautiful Seattle day - sunshine twinkling across the water and little sailboats floating by! I popped in my "Shout to the Lord 2000" cd and sat by the window sipping a cup of hot tea just taking in all of God's beauty! My counts had actually gone down somewhat - this is very normal. I don't think they expect engraftment before Day 14 at the earliest so I just have to be a patient patient. I received two units of red blood cells today as well as the normal stuff. My nurse decided to premedicate me since it was the last time I got rbc's that I had the breathing problem - probably not connected but better safe than sorry. One of the meds was benadryl so I was able to take a much needed nap. Bob was here to take both the morning and afternoon walks with me. We looked like we were taking a Sunday stroll through the park. The girls came in the afternoon with a project to work on - they are compiling a scrapbook with all the cards that I've been sent - they are such wonderful children and the scrapbook is looking good.

August 18, 2001 - Day +11

I had another uneventful day - that's just the way I like it! Laura spent most of the day with me which I enjoyed very much. She was here to take the morning walk with me and then in the afternoon I was sandwiched by both girls - these are special moments. I am beginning to be comfortable with my baldness - don't necessarily like to look at it - but it sure makes it much easier to get in and out of the shower quicker. :) I can probably get ready in about 20 minutes now except for changing the dressing. I am still a strange color and my eyes are still quite yellow - so when I pick out a scarf for my head yellow is not a choice! My mouth seems to be doing better than most - even the nurses are convinced I must have gotten the real laser - my throat is a little sore but I'm managing to eat and drink still. The only other news is that my white blood count was slightly higher - I hope and pray that will be a trend. And finally another neat little song from the CD called Oh Draw Me Lord. "Oh draw me Lord, Oh draw me Lord, Oh draw me Lord, And I'll run after You." It's short but sweet especially with the music.

August 17, 2001 - Day +10

I had a great day today - the diarrhea slowed down, walked my two miles, didn't have a fever all day for the second day in a row and managed to eat breakfast, lunch and dinner! I think one of the nicest things was getting to hold Bob's arm as we did the laps. :) My day nurse, Susan, made sure that I got over the only other hurdle - the chills from the anti-fungal drug - by getting an order written for demerol before the drug and at the midway point. Seems to have worked because I just finished and feel nice and warm.

Susan, the nurse, and I were talking while I was eating dinner and I ended up sharing my faith journey. She told me that she thought I was also here to be a blessing to the whole staff - I was overwhelmed and touched. Praise God for answering prayer. That brings me to today's devotion from Streams in the Desert - "I have faith in God that it will happen just as he told me." Acts 27:25 I would really love to type the whole devotion but instead I will give you the gist. A Captain of steamship crossing the Atlantic to Canada tells of a man he met who said he had to be in Quebec by a certain date and would they be able to make it. The Captain said that they were in a very dense fog, so it would be impossible. So the man said he would get God to find some other way. They went down to the chart room to pray. When he finished, the Captain started to pray, but the man stopped him and told him not to. He said that first of all the Captain did not believe God would answer, and second, he believed God already had. And here's the best line - "Captain, I have my Lord for fifty-seven years, and there has never been even a single day that I have failed to get an audience with the King." Isn't it incredible that any and every time we want to speak with the King of the Universe He's ready to hear us! It just made me weep thinking about being loved that much. It also reminded me of when I was trying to learn about discernment - and realized that the deal is that when you ask God for wisdom expect Him to answer and then act in faith. God has promised to answer us but we must have the faith that he will do so. Oh by the way when they went back to the deck the fog had lifted!

I finally heard the title track song from my new CD - Press On. This one is even better than Hold On. "When the valley is deep, When the mountain is steep, When the body is weary, When we stumble and fall. When the choices are hard, When we're battered and scarred, When we've spent our resources, When we've given our all, In Jesus' name, we press on. In Jesus' name, we press on. Dear Lord, with the prize, Clear before our eyes, We find the strength to press on." May have to make this my theme song!

This is from Bob, Amy is doing fine and she will post later. They have determined that what was causing Amy's problems is hyper-acute graft versus host disease (GVHD). This is being treated with prednisone (a steroid) and the symptoms have subsided. This is unusual in that although GVHD was expected from an unrelated donor, it does not usually appear until after engraftment. However, in Amy's case, the donor cells immediately began attacking her body. It is unknown what effect this might have on engraftment or the severity on GVHD following engraftment. The guess is that she might have somewhat stronger GVHD than would otherwise be anticipated although there is not much data available to judge this. Amy's attending physician is Derrick Stirewaldt. He does research on CML when he is not doing his 30 day stint as an attending physician. His wife is also a medical researcher. He is from Lexington, NC and graduated from med school in Chapel Hill. Today he wore his Tar Heel tie just to make Amy feel at home. I told him that he ought to take that tie off until after football season. To balance Dr. Stirewalt, Amy's primary physician is Tanya Wahl, who graduated from Duke med school.

I had a chance to visit with some of the other families in the patient family room, and determined that Amy so far is doing much better than most of the patients. Listening to their stories was quite an experience.

August 16, 2001 - Day +9

Day 9 and feeling fine! Praise God - we did have an uneventful day! Although I did have another small episode last night, I haven't had a fever all day nor any more trouble with breathing. My chest x-ray this morning was much improved and I was able to complete 11 laps this morning before having to be hooked up to meds for the rest of the day. I have developed a severe case of diarrhea due to mucositis of the digestive tract - all to be expected. They are culturing a sample before deciding what to give me to slow it down - so I am being careful about which foods I picked to eat (primarily bland). So during the afternoon I listened to a new CD - has some wonderful songs. Hold On - a few words - If you feel today that you can't make if, Keep holdin' on, cause you can't take it, If you hold on a little while longer, Hold on a little while longer. Hold on. If you feel it's raining all in your life, And day by day, there's nothin', Nothin' going right, Just hold on a little while longer, Hold on a little while longer, Hold on. You gotta hold to His hand, God's unchanging hand, You gotta build your hopes on things eternal, My God will never let you down. Weeping may endure for the night, But if you trust in Jesus, Everything's gonna be all right, Just hold on a little while longer, Hold on a little while longer, Hold on a little while longer, Hold on. Hold on. Aren't those wonderful!

I confess yesterday was very frightening to me - I couldn't sing a single song in my head. I tried to think about this verse"I will not die but live and proclaim what the Lord has done." Psalm 118:17 - Joan Creasy showed me that verse the Sunday we told the church the diagnosis. I have repeated it many many times in the last two years- but I just couldn't. When I finally got my breathing under control somewhat I still had to have Bob play a CD in the computer so I could at least hear something but they had to be slow and soothing. The two songs that helped the most were "How Great Are You Lord" and "Shout to the Lord."

August 15, 2001 - Day +8

This is Bob. This has been a hell-of-a-day (I guess I should say "intense" but I don't think that would adequately describe it). We have had about 4 crises already and its only 5:30 pm, but Amy is now resting peacefully (she just woke up and asked me if we were having fun yet!). Amy is hairless, bloated from all the fluids they are pumping in her, and her skin is a strange color - but she is still beautiful. They have been forced into giving her more powerful drugs and earlier than they would like to. We both agree, that as good as the staff is here, the only way she will get through this is by God's mercy and grace - He has plenty of that, we just need it continually focused here in room 8220.

I am amazed at the medical attention she is receiving. This staff knows how to immediately respond to any crisis that has come up yet and have almost anticipated some. Suddenly, both of her doctors and her nurse appear in the room and start working on the problem, followed by the support staff they need. Then the specialist she needs show up. Both of her doctors are on call and one always stays in the in the hospital over night. They are on duty for 30 days straight. How does that compare to sitting in the waiting room for an hour?

We are praying for an uneventful day tomorrow.

By the way, they are expecting engraftment to occur about day +20 or +21. We will begin watching for signs about day +14, looking for a rise in polys and white blood count.

August 14, 2001 - Day +7

Yesterday was was probably the worst day I have had so far - it was like being on a roller coaster - first the shaking (we're talking uncontrollable and hard) and then extreme heat (reached about 105 degrees at one point), then it would break for a little while. I decided this morning that this should be called the "shake & bake" phase. Naturally everyone was concerned and all sorts of tests were ordered - chest X-ray, CT of sinus, CT of abdomen and pelvis (had to pray through the latter that the shakes wouldn't start - they started as soon as they rolled me out of the machine). They also changed the antibiotic that they were giving me to a different one. In addition I received platelets twice, and a couple units of red blood cells. The hair loss began yesterday too.

This morning I woke feeling relatively good although tired and sore from the horrible shaking, and yellow - sort of the way jaundiced babies look. I was able to eat breakfast with no problems. Not knowing how the rest of the day might go, Juanita, my nurse, decided that I should try to shower & walk by 10 a.m. so that as soon as the doctors made their rounds (which was later today) I could get some serious rest! She also would have shaved my head today but I prevailed since Bob was coming today. However, it is going tomorrow - and you know that part doesn't even bother me anymore because it doesn't even feel like hair! In the shower it is a riot - there's hair everywhere - getting it off my fingers is the worst! Any way I think I may have a little balding spot in the back of my head but I'm not looking. Since I didn't have any socks (Daddy had gotten them out but forgot them.) I had to wear slippers - I could only do 1/2 mile in those. So I was a little worried that I would not get in all my laps today either if I started with "shake & bake." Although I did have a fever at one point this afternoon - it wasn't really high nor accompanied by the shakes - Hallelujah! Bob arrived at the hospital about 1:30 - it was sooo good to see him!!! :) So he got to go with me when I went for an abdominal & pelvic ultrasound - can't complain that they aren't thorough.

From Streams in the Desert today - "Isn't if glorious to know that no matter how unjust something may be, even when it seems to have come from Satan himself, by the time it reaches us it is God's will for us and will ultimately work to our good?" And we know that in all things God works for the good of those who love him. Romans 8:28

Over the "shake & bake" - the chorus to My Heart Will Trust came to my mind. I'm not sure if we have done this one at Asbury but the words I was singing in my head were - "Though I walk through valleys low, I'll fear no evil. By the waters still my soul, My heart will trust in You."

August 13, 2001 - Day +6

This is from Bob - I woke up this morning to find out that Amy hadn't posted so I thought I would bring you up to date.

First of all, I would like to thank the prayer warriors who met last night at Asbury to pray for Amy and her family: Janet Bickel, Woody and Teresa Middleton, Skip Roy, George Derbyshire, and Larry Jones. There were some mighty prayers lifted up and I felt strengthened afterward.

After leaving church, I went to my office and called Amy. I talked to her Dad who said that she was not having a very good day. In the morning, she developed chills and then a fever of 102.5 which is high for Amy. This was treated and it subsided but came back in the afternoon. When I talked to her she had ice packs on her head to cool her down. They have taken a blood culture to see if she has an infection and if she does, she will be put in isolation. However, the fever and chills are to be expected in this procedure. Dr. Deeg told us last year that the hospital stay is like having the flu for a month.

On the positive side, Amy was able to eat a little bit yesterday and do some of her walking in between fevers. She is receiving antibiotics, potassium and protein through her central line.

I am leaving early tomorrow morning for Seattle - a lot has happened since I was last there.

August 11, 2001 - Day +4

I went to sleep last night feeling groggy but singing to myself - "I will bless the Lord at all times, His Praise shall continually be on my lips." When I woke this morning I realized that I had a clear head for the first time in a couple of days - "Thank God with a grateful heart" immediately came to mind. As I was contemplating how I felt my wonderful husband called and we had a good chat. He suggested that maybe I might try eating without the anti nausea drug - he also suggested that I sing a welcome new cells - be my guest song too! At any rate I decided to try to go without the drug - I have felt great all day. I even realized this morning that I was experiencing some hunger pangs! Cool! So I had some graham crackers in addition to the breakfast. I have been able to eat more today and have found that if I nibble on something every couple of hours as per Celia's suggestion I seem to do better! I got to have a little diversion today - got a ride down to X-Ray in a wheelchair with a nice warm blanket wrap. Also I have been sitting in a chair for a good portion of the day - sure makes my back feel better.

My devotion today was cool - "Though the fig tree does not bud and there are no grapes on the vines, though the olive crop fails and the fields produce no food, though there are no sheep in the pen and no cattle in the stalls, yet I will rejoice in the Lord, I will be joyful in God my Savior." Habakkuk 3:17-18 What a confirmation of what God has done in me!

Thanks again for all the cards, letters, emails, cds, tapes, etc. - sure makes me feel closer to all of you!

August 10, 2001 - Day +3

I've had a great day today - felt better and my color was better! However, I've been told by all the doctors that I am boring - which doesn't upset me one bit! Actually they didn't say I was boring just that there wasn't anything much going on with my mouth or body for concern. I continued to take the anti nausea drug as a preventative today and managed to eat at least a little of what was brought. It's weird about walking - I can do the whole thing with no problem but as soon as I stop my legs get all rubbery! I guess that's just part of the overall tiredness that goes along with this. I thought I would do lots of reading but at this point I can't seem to force my mind to do it - I'm told that's normal. However, my mind still is filled with songs of praise even if I don't have the energy to actually sing them! "His praise shall continually be in my mouth."

August 9, 2001 - Day +2

God's mercies are truly new every morning! I awoke this morning feeling better than yesterday, not necessarily super, but definitely better. They have found an anti nausea drug that seems to work better without knocking me out - so that's good. I even managed to eat a little today - mainly liquids but that is also better than yesterday. I think they have decided that they may go ahead and give me "steak in a bag" but that was going to happen any way so no biggie! I did manage to walk at least one mile so far today and hopefully will get the other mile in later this afternoon. My pace was slow for me but my Dad kept me company and on track.

August 8, 2001 - Day +1

(this is Heather, Amy is not feeling up to updating the site today) The transplant began last night around 9:45 and took 2-3 hours. The nurses speculated that the donor is probably overseas because of the late arrival of the stem cells. She slept well last night, but woke up feeling nauseous this morning. She was unable to keep anything down today but did manage to walk a mile (doing laps in the hospital). By tonight she was feeling a little better and they gave her some medicine that made her tired. Before we left the hospital tonight she was able to eat some chicken noodle soup and a few crackers.

August 7, 2001 - Day 0

Since I got up this morning everyone has been telling me that although this is the big day it is somewhat anticlimatic - transplant is more like a transfusion. The stem cells are expected to arrive at the airport approximately 7:30 p.m. - going first to the lab and then to the hospital. So the process should begin around 9:30 or 10 tonight. Depending on the volume of cells it should take two to three hours - and then we wait! Bob tells me I should say a verbal welcome to the cells when they arrive to make sure they know they are truly welcomed!

I did have a bit of diarrhea today but recovered by this afternoon so I was able to leave the hospital again. This time the girls, my dad and I walked down to the water and found a good view of the water and sailboats with a place to sit in the grass in the sun. The weather was perfect today about 77 with a breeze. There also was a great view of Mt. Ranier today. It was especially good to be out in the sunshine!!

The new attending physician came on today - he grew up in Lexington, North Carolina, and went to UNC-CH med school and the PA went to Duke - almost makes me feel like home.

August 6, 2001

I'm finally up and running here at the hospital! It took several phone calls back and forth with Bob - he says I'm high maintenance - but I can now receive email again and update the site myself. I am doing well so far - no nausea, vomitting - walking my laps with the IV tree (the fastest on the hall at right now), doing my saline rinses, and keeping my sense of humor!! Let me tell you about the hospital food - don't get the beef!! It is awful - I've gotten it twice now - neither time by choice. Also it doesn't seem to matter that I ask for tea - I get coffee. However, there is a nutrition/snack room on the floor so the nurse just gets me something else to drink! So I fill out the menu for the day every morning and then get surprised when it arrives! :) The doctors were in this a.m. and said that I could have a pass to leave the hospital this afternoon for awhile - that was a pleasant surprise! After I receive cyclosporine by IV I think we will take a walk on the U of Washington campus. I've already been up to take a shower, dry my hair (while I still have it), and in general primp! Feels good! Last night I was having a feeling loneliness around 11:30 and worrying about mucositis (because the nurse said something about seeing the beginnings). I began singing - out loud for a change - "Shout to the Lord." I really wasn't concentrating just singing softly. The interesting thing is that I have been unable to remember the last line for several days - "Nothing compares to the _____ I have in you." I had just been adding words such as joy, peace and love, but I knew none of these were right as far as the song goes. Well last night alone in my room the word came and with it the realilzation that God is sooo good! Nothing does compare to the promise I have in Him!

(This is Bob posting as I am working on setting up a dial-up internet connection for Amy to use in the hospital)

Amy entered the University of Washington Hospital as planned on Saturday morning and has now completed the high dose chemotherapy in preparation for the stem cell transplant. Infusion of the donor stem cells (referred to as the "rescue") is anticipated to begin on Tuesday, August 7. On Saturday and Sunday, Amy received a drug called cyclophosphamide. She has at least four tubes entering and leaving her body and they measure everything that goes in and comes out. On Monday, they will flush the chemo from her body so she will ready to receive her new stem cells.

She is in good spirits and when I talked to her last night, she was eating and feeling well. We are taking this one day at a time. Amy says "so far, so good" and added that "God is good-all the time".

August 3, 2001

I have just one more dose of Busulfan to take at 2 a.m. tonight before going to the hospital tomorrow morning. I still haven't had any side effects - the doctor said perhaps I would just eat my way through the transplant and get to leave the hospital in two weeks - wouldn't that be great! I've been practicing my handwashing technique for public bathrooms the last two days - use paper towels to turn on water, wash hands for at least 20 seconds, turn water off with paper towels, dry hands with clean paper towel and open door with paper towel before throwing away - almost have the routine down without thinking about it. :)

My devotion from Streams in the Desert this morning was perfect. "Be men of courage; be strong."I Corinthians 16:13 The writer goes on to say - "Never pray for an easier life - pray to be a stronger person! Never pray for tasks equal to your power - pray for power equal to your tasks. Then doing your work will be no miracle - you will be the miracle." Phillips Brooks

It is clear to me that the transplant process will be tough, but it is also equally clear to me that God's strength is more than sufficient!

August 2, 2001

My dose of Busulfan was raised this afternoon by just a little - Laura says it's because I wasn't having any side effects so they're trying to make up for it on Day 4! When I picked up my medication this evening the pharmacist thought it was for someone else - said I looked like I was ready to go dancing. I made it through another laser treatment - this time I sang "Let the weak say I am strong" - don't know the proper name of the song. The wig has been purchased - I stuck with blonde - and it is about chin length. The girls went with me and it was fun to watch their reaction to the shortness and different colors. The best news today was finding out that I don't have to be at the clinic at 7:45 tomorrow morning!!! :)

August 1, 2001

Other than being a little tired from getting up at 2 a.m. and then again four hours later, I feel good. So far the dosage of Busulfan has remained the same - the levels are right in the target range. I even managed to keep my tongue from moving during the laser treatment today by singing the chorus to "The Power of Your Love" in my head. When I thought I couldn't stand it another second, I just sang it louder in my head and concentrated on the words. Since the blood draws were every two hours after 10 a.m., my Dad and I were able to walk to a nearby restaurant instead of eating clinic food again. It was good to get out and walk even though it was cool outside - and the food was much better! Tomorrow the girls and I are going wig shopping. Although I have had several votes for red, I plan to stay blonde - at least at first - not sure of the length yet. I know that the picture on this site looks like I have red hair but I never did - it has always been some shade of blonde not as light as now but I didn't have to cover gray then! :)

July 31, 2001

My morning devotion from Streams in the Desert was especially meaningful to me today as I prepared for the chemo - the essence was about asking for God's guidance, trusting Him and seeing what God will do! With that in my head I left with great confidence, a light heart and a song (All Things Are Possible) on my lips for the clinic.

"With skillful hands he led them." Pslam 78:72

And so far so good - 2 doses down and 14 more to go! Except for the foggy brain I had as a result of the Dilantin, I have experienced very little at this point - just a lot of blood draws and keeping track of which medication should be taken when and with or without food. Can't remember if I mentioned that I am participating in a double blind study to see if a certain type of laser treatment is more effective at preventing or lessening the severity of mucositis. Today was the first treatment (don't know if I had the real thing because I was blindfolded). Everything was fine until she started doing my tongue - I had no idea my tongue was so ticklish! I just couldn't hold still - how embarrassing - it would have been much easier if I could have just held it!! The girl who did it was from Brazil and her English was not very good - so when she tried to get me to sort of roll my tongue over to the side, she starts using her hands which I can't see. I thought I was going to have a laughing fit! (I did have one when I told my Dad about it - because of course I could use my hands to explain.) At the clinic visit we spent more time chatting about things other than health stuff - probably because nothing is wrong except for MF - and laughing together.

July 30, 2001

When I received my schedule I wondered what the chemo teach was - well now I know! It was basically giving me all my medications (I've never seen so many medicine bottles except in a pharmacy) and going over the doses, schedules, etc. for each! It's a good thing I don't have trouble swallowing pills or this could be a real problem! At any rate after the nurse explained everything, I had to repeat everything to make sure I understood - this was probably a great idea since Bob says I think differently. :) Apparently the Busulfan can in some people cause seizures, so to prevent that I am to load up on Dilantin tonight at 5 p.m., 8 p.m. and 11 p.m. Supposedly it will make me quite drowsy after the 8 p.m. dose but for some when they take the next one if makes them hyper. Hopefully I won't be driving everyone else crazy bouncing off the walls. :) Beginning in the morning around 7:30 a.m. I am to take Kytril (anti-nausea) and then be at the clinic by 7:45 a.m. for a blood draw before the first dose of Busulfan, which is to be taken at 8 a.m. Blood draws are then scheduled every 30 minutes until 10 a.m. After 10 a.m. they are done every hour until 2 p.m. At 9 a.m. I have to take Bactrim, Fluconazole, Allopurinol and Acyclovir. My next dose of Busulfan is at 2 p.m. then I get to go home to wait for them to call about the new dosage. I will then pick up doses 3, 4, 5 & 6. At 7:30 p.m. I am to take the Kytril again and then at 8 p.m. dose #3 of Busulfan. At 9 p.m. - Bactrim, Dilantin and Acyclovir. Then I have to take the dose #4 of Busulfan at 2 a.m. In addition to all these drugs I was also given Ativan, Benadryl and Compazine (not all together) to try should I experience nausea before it is time to take the Kytril. I repeat this schedule for the next three days, except that the blood draws are every two hours. On Saturday I enter the hospital to begin Cytoxin (not sure of the spelling). The interesting thing to me about the Busulfan is that they put a certain number of 2 mg tablets inside gel caps to prepare the dosage - so for me I have six gel caps with five 2 mg tablets each for a total of 60 mg per dose to begin with. (Most of you are probably saying why would she think that is interesting - well, you know math majors love numbers!)

Good news - Heather found a job today! She is going to work for a caterer. Apparently they have lots of 18-22 year olds working for them - so hopefully she will meet some young people as well as earn some money.

I forgot to mention something Laura and I did last week while I was recovering from the sedation that was so special to me. We went to the clinic chapel - no one else was there - and sang a two-part version of "Seek Ye First." (Either the acoustics were really great in there or maybe it's like being in the shower - because we thought we sounded really good!)

So tomorrow it begins - am I dreading it - no, that is why I came. I feel God's presence every step of the way providing me with all I need to meet what comes my way.

"Not that we are sufficient of ourselves to think any thing as of ourselves; but our sufficiency is of God;" 2 Corinthians 3:5

July 29, 2001

This has been a good weekend - I've had time to relax and rest, and get organized for the days ahead. I was so grateful to finally be allowed to shower Saturday morning - however it was quite a process! I can see how not having hair would make things easier!! Here's the routine - get out the supplies, wash hands, put on gloves, remove old dressing, remove gloves, cover entire area with an Aqua Shield, shower (wash hair, shave, worry that the area is getting wet), dry off, dry off the plastic shield, remove shield, wash hands, put on gloves, clean three separate times with iodine swabs in a circular motion, then clean three separate times with alcohol swabs, using alcohol wipes clean entire line from exit to ends, put on split gauze, put on another split gauze, put on a plain gauze, remove gloves, tape dressing and make tape tabs for ends of catheter. Now I'm ready to get dressed, dry my hair, etc. Oh well, after years of waiting for the rest of my family to get ready I guess it's their turn to wait on me!:) I wonder how early I'll need to get up to make a 7:45 a.m. blood draw! :(

We tried a different church this morning - one the chaplain had said would be the most contemporary - NOT! It was probably the most traditional church service I have been to in a long, long time. And the church itself was tiny with very few young people - the oldest young person was probably six and the youngest old person was probably 35! Plan C is to try University Presbyterian's 7 p.m. contemporary service next Sunday.

My Dad arrived this evening to stay until Bob comes out on the 14th. Although I have really enjoyed these past few weeks with just the girls, as I finaly begin treatment it is a special blessing to have him here!

While I've been out here I read Secrets of the Vine ,the second book in the BreakThrough Series that includes Prayer of Jabez. It gave me a much better understanding of what Jesus meant when he said he was the vine and his father the vinedresser, and the purpose of pruning.

July 27, 2001

I arrived at the clinic this morning to begin the second attempt at harvesting enough stem cells. I figured that this would be much easier than before since I now have a central line - wrong! For some reason they were not able to get enough blood to come out so once again I had to be stuck - but only one arm - they were able to use the central line as the return. The process took a total of five hours because my platelets may be few but boy do they do a great job! During the fifth hour the nurses told me that I might have to return tomorrow morning - I was already getting antsy from lying so still - so at that point I began humming to myself "Open the Eyes of My Heart", "Eagle's Wings" and "How Great are You Lord". And truly He is great - I was able to stay still and I just received a call that they collected more than enough stem cells! Hallelujah! We did have to return to the clinic this afternoon for a lesson on how to care for the central line. I wasn't sure Heather could handle it but she did great - even flushed one of the lines!

"God's purpose was that we who were the first to trust in Christ should praise our glorious God." Ephesians 1:12

July 26, 2001

The central line "placement" went well this morning. Barry, the sedation nurse, told me that the medication would make me mellow and that I probably wouldn't remember anything much about it - he was right! I was pretty much mellow all day especially after taking the pain killer. This afternoon I received another two units of blood - it was sooo much easier and painless through the central line! Hopefully after a good night's sleep the effects of the sedation (wooziness & tiny pupils) will be gone and most of the pain. Since they did not get enough stem cells yesterday, another attempt will be made tomorrow.

July 25, 2001

Mercy! The last three days have been interesting!

On Monday Heather, Laura and I were able to make the trip to the San Juan Islands. It started out foggy but eventually the sun burned away most of it leaving a breathtaking view of blue water and green islands. Just before the ferry docked at Friday Harbor, Heather spotted a sea lion in the water and hopes were raised that we would see the whales. We rented one moped and one scootcar (a two person moped - sort of looked like an insect) to tour the island. However we didn't really see the whole island because we went to Lime Kiln Lighthouse Park to watch for the Orcas. We were told that there are three pods in the area now so even the girls were willing to wait. Finally we felt we had to start back to catch the ferry, but Heather was keeping an eye on the water as I drove. All of a sudden she starts yelling whales, whales, stop! Sure enough a whole pod was passing by - some quite close to shore. Although we didn't see any breach we could hear them blow and make noise with their tails! What an awesome sight - and what a blessing the whole day was!

Tuesday morning began with Laura waking up feeling terrible - so I began a search for a doctor to see her. Finally had her seen by a doctor in the late afternoon and then went to get a prescription filled. My cell phone rings and the nurse asks how soon I can get to the clinic - they need for me to get 2 units of blood that night at UW Medical Center - because they are planning to harvest my stem cells in the morning! So here I am in the "mother-mode" at 4:30 and trying to figure these logistics, etc. in the middle of the pharmacy. My nurse said they would arrange my transportation from the clinic to the hospital and then back home for me - so Heather dropped me off at the clinic about 5:15 where I had a blood then went to the hospital. The transfusion took about four hours - it was about 11:30 when I got home.

Today I was at the clinic a little before 8, quite an accomplishment for me! The stem cell harvesting was an interesting process - would have been more interesting if it wasn't me! Only problem I had was that the veins in my right arm were being difficult so they used a vein in my hand - only had one extra poke this time. I'm told that the process is similar to donating blood where you squeeze a ball every ten seconds except that I had to do it for two hours. The last five minutes were the toughest, I tried to come up with alternate type squeezing using individual fingers rather than the whole hand! Hopefully enough stem cells were harvested so I won't have to do a repeat of the transfusion and harvest tomorrow night and Friday a.m.

Tomorrow I have to be at the clinic by 7 a.m., and I thought today was tough, to have the central line put in. After all the trouble they've had with the right arm I think I am actually ready for it. God is so amazing!
"You do not realize now what I am doing, but later you will understand." John 13.7

A few other tidbits - My donor has been given the final clearance and interestingly enough his blood type is B+ and mine is A+, so after the transplant I will become B+. See it didn't matter if I knew before because it is all going to change! The schedule has been accelerated somewhat, the transplant is now set for August 7th so chemo will start July 31st. A special thanks to all of you for your prayers, cards, emails and calls!

July 22, 2001

Except for the final clearance on the donor, everything is essentially ready to go - all the t's are crossed and i's dotted! The results of the evaluations were that I am in great health except I have MF - sort of the good news, bad news scenario. Since finishing with the tests my clinic schedule has been light. This Thursday I am scheduled to have the central line put in. Then beginning on August 1st through August 4th I will be given one of the chemo drugs on an outpatient basis. On August 5th I will be admitted to the hospital to continue the "conditioning". The transplant is still scheduled for August 8th.

I am taking advantage of the light schedule to do some sightseeing with the girls. We've visited Pike Place Fish Market, the Seattle Center and Experience the Music Project; ridden the monorail; and taken in a new movie (America's Sweethearts). Today we visited another church, Bethany Presbyterian - a small church on Queen Anne Hill - that I had been told did praise and worship. It was basically a blended type service - contemporary and traditional. I'm not sure what this means - but the most of the churches that have been recommended are Presbyterian! At any rate, we have two others to check out. Tomorrow we are hoping to drive to Anacortes, WA, and then take the ferry to the San Juan Islands to see the whales.

A friend loaned me two wigs, some scarves and hats to experiment with - and for the three of us to play with. Heather and Laura each put a wig on, tied scarves around their necks and put on a pair of my reading glasses. It was too funny! Then Heather found some wigs on the internet - in particular a Raquel Welch spiky hair thing. Does anyone remember that one? After I finally stopped laughing I realized that my concern about the hair loss had sort of dissipated - isn't it amazing how God works!

July 18, 2001

Well after a week of tests, meetings, classes, etc. I'm still in good spirits. Even got a reprieve today! The central line placement has been postponed until Thursday, July 26! I knew that I wasn't quite ready for it - God is so good!! Today I met with the gynecologist, chaplain and dentist - all were pleased with my overall health (physical & spiritual). In fact, I have been asked if I am the caregiver more than once. However, they are into preventive stuff - so I now am taking an antibiotic to prevent pneumonia and a hormone replacement. I have been enjoying time with the girls! We've done some major walking since I've been here! The hills can be tough but I've survived them too! Sonny and Celia Grashot took us to see the Pacific Ocean last Saturday. We couldn't get over how cold it was - both water & air!! We had a great time though and the girls were thrilled because they found eight sand dollars intact. At night we have taken turns cooking, have watched movies together and even have read through some of the Patient & Caregiver Guide. In fact one night we were on my bed reading about food together and giggling - that was special!

July 12, 2001

It has been an incredibly busy three days! The first day I was assigned to a team - Blue. Sort of made me feel like I was back in preschool!! :) I met the PA who did a physical and the RN who gave me an orientation and lots of reading material. I also had a chest X-Ray and of course some blood sucking - about 14 tubes. On Wednesday I was given a reprieve and just had meetings and given lots of information (nutrition, social work, finance, attending physician). By last night I had a mental overload so the girls and I went exploring downtown Seattle and then ate at a restaurant on the water. This morning was my first bone marrow biopsy and aspiration here. They were actually able to aspirate something - even had some spicules in it - mind you they were very small but there!! Despite the hardness of my bones they were also able to get a good biopsy too. The nurses were impressed that I didn't need any sedation to stay still - I told them that I sing praise choruses in my head. This morning it was Shout to the Lord and How Great are You Lord! God's hand is enfolding me!

July 9, 2001

Bob made the trip from Kansas City to Seattle in two days - giving him an opportunity to check out our new home. Amy, Heather and Laura arrived Saturday and are trying to get settled. Today Heather and Laura are exploring downtown Seattle. Tomorrow Bob will return to Raleigh and Amy will have her first appointment and tests.

July 1, 2001

Amy, Heather, and Laura depart by car for Seattle, WA following church services and a special blessing from their friends.